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Autism Spectrum Disorder: Personal experiences beyond stereotypes and assumptions.

User Profile: MyNameIsNicole
MyNameIsNicole April 3rd, 2022

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In celebration of Autism Awareness Day, these amazing people started off the interview series with responses to questions to living with autism, the things they are passionate, and what they wished people new about autism.

Shout out to @wonderfulRainbow817, @markx23 and @sunshinegiraffe123 for their time and effort❤️


wonderfulRainbow817:

Question 1: We understand that autism is a spectrum, and there is a wide variety in the type and severity of characteristics. What can you tell us about living with autism?


Answer: Living with Autism is a challenge at times. I was diagnosed when I was 8 but when I was 5 my parents first started noticing I had extreme anger issues, more than the average 5 year old. I was also super sensitive to lights and noises, but I wasn’t able to express that at the time. The thing that I struggle most with though is socializing with others. I have a hard time reading others’ emotions so I never know how to continue talking or I don’t get the sign to stop talking. Sometimes I respond to conversation in an abnormal way for most but for me it seems normal. I also lack maintaining eye contact.

Question 2: Why is Autism Awareness Day important to you?

Answer: Autism Awareness Day is important to me because it brings knowledge to others who may not know what Autism is or has a misconception of it. It’s a day where each of us can talk about each type/severity of Autism that affects us.

For example, some cannot work or talk as the average human being would with words. On the other hand, I personally have high functioning Asperger’s Syndrome where I can work, talk, and express myself. I am fortunate that I can do these things that are harder for others. Being able to bring awareness to our different types of Autism lets people see the people we are because we are much more than just a person with Autism. We are capable people, and even those who can’t communicate as well are still important and matter in the community.

Question 3: What annoying questions do people ask you about autism?

Answer: The number one question I hate that people ask is “Oh, so you can’t work and have to live at home with family right?” While that is what happens with some that’s not the case with everyone. Also, so what if that is the reality for some people? People who don’t have Autism face the same situation sometimes as well. It doesn’t make them any less of a person.

Question 4: Are there things you wish people understood more about living with autism?

Answer: I wish people understood that it’s ok to ask questions, as long as it is done politely. I’d rather people ask me questions about my Autism and understand me than not understand why I say or do some of the things I do.

Question 5: What are the things you struggle with as a person with autism?

Answer: I struggle with socializing due to the things I stated above about trying to figure out what someone else is feeling. Also, I am a very literal person so I do not get figurative of speeches very easily. For example, when I first heard the phrase “It’s raining cats and dogs” I was age 10 and literally looked up to the sky.

Question 6: What are you passionate about?

Answer: I love anything sports related. I also like volunteering and being a support for others, with and without Autism.

Question 7: How do you advocate for autism awareness? What is something you hope to achieve when it comes to autism awareness?

Answer: I do a monthly post on my social media handles to spread awareness about different topics of Autism to my friends and family. It helps them understand me better and even helps for communication to be better between myself and the others by knowing why someone like me does the things I do.

Question 8: Before we end this interview, what is one thing you want to say about people with autism?

Answer: I’d like to share this quote by Stephen Shore, “If you’ve met one individual with autism, you’ve met one individual with autism.” It doesn’t matter if someone else has the same missing genes or type/severity of autism. What they go through is different than what someone else with the same type goes through. Autism doesn’t make anyone less and if anything it should show that love doesn’t need words.

Are there any other things you would like to share with us?

The best resource I can provide is the person you know who has Autism. One can read up on how to best help but in reality the person is going to be able to tell you best how to best communicate with them and support them as they live with Autism.

Thank you wonderfulRainbow, you're a super person❤️

Mark shared some fantastic slides with us that tells us a little more about his experiences with autism, and why he's such an avid advocate for autism awareness. He also started up a business to provide job opportunities for people with autism. Just in perfect time with this year's inclusivity theme!


Question 1: We understand that autism is a spectrum, and there is a wide variety in the type and severity of characteristics. What can you tell us about living with autism on your own terms?

Answer: Autism is a gift not a curse. However, there are some drawbacks when it comes to controlling emotions.

Question 2: Why is Autism Awareness Day important to you?

Answer: I myself am on the autism spectrum and I feel like it’s my duty to educate those who are not on the spectrum a thing or two.

Question 3: What annoying questions do people ask you about autism?

Answer :I haven’t received any.

Question 4: Are there things you wish people understood more about living with autism?

Answer: It’s a gift, we should not try to cure it.

Question 5: What are the things you struggle with as a person with autism?

Answer: Controlling severe emotions, such as anger.

Question 6: What are you passionate about?

Answer: I’m passionate about a lot of things, including pop culture and books, but I’m mostly passionate about my cause. I have shared slides I made about living with autism with you and others in the past. This is not my first time praising autism as a gift in slide form.

Question 7: Can you tell us more about the initiative you’re starting up and what you plan to achieve with it?

Answer: My business is an online raffle service where people can possibly win e-tickets to concerts and theme parks. Since regular businesses cannot do raffles in California, I had to make it a nonprofit. Score! The foundation that I have to start will help fund other autistic kids business ventures.

Question 8: Before we end this interview, what is one thing you want to say about people with autism?

Answer: We people on the autism spectrum are a gift to society, whether people see it or not.

sunshinegiraffe123:

Question 1: We understand that autism is a spectrum, and there is a wide variety in the type and severity of characteristics. What can you tell us about living with autism?

Answer: Living with autism has made me have lower social skills then others my age. It also has lead to a lot of overstimulation which in turn causes meltdowns. I also sometimes struggle with communication as I’m semi-verbal and I struggle with identifying my emotions at times.

Question 2: Why is Autism Awareness Day important to you?

Answer: Autism Awareness Day is very important to me because I’m an advocate. Even here on cups, I work closely with admins to make it more positive for people on the spectrum. However, I view all of April as Autism Awareness Month as that’s what April is for.

Question 3: What annoying questions do people ask you about autism?
Answer: The most annoying questions I get asked would be, do vaccines cause autism, why do you stim, are you roleplaying your meltdowns, why do you you seem so shy around me, well I have autism but you don’t act like me, so does that mean you don’t actually have it?

Question 4: Are there things you wish people understood more about living with autism?
Answer: Yes! I wish people understood that it’s not always easy. My meltdowns are true, not roleplay. My stimming is how I regulate myself, as I can’t do it how neurotypicals can. I wish neurotypical people knew how exhausted meltdowns can make me.

Question 5: What are the things you struggle with as a person with autism?
Answer: I struggle with communication and trust issues as well as regulation as a person with autism.

Question 6: What are you passionate about?
Answer: I struggle with communication and trust issues as well as regulation as a person with autism.

Question 7: How do you advocate for autism awareness? What is something you hope to achieve when it comes to autism awareness?
Answer: I'm passionate about my special interests, educating others in many communities on autism, seeing communities listen and change once they learn about autism.
Question 8: Before we end this interview, what is one thing you want to say about people with autism?
Answer: I advocate for autism awareness by informing every commod and moderator as well as admin here at 7cups that I’m on the spectrum. I also had a guide done for me by a now retired ambassador that I send to members, listeners, and everyone else. I hope to achieve that people will know how to help me during a meltdown and be respectful towards me at all times.

Are there any other things you would like to share with us?
One thing I’d like to say about people with autism is we are unique and sensitive so please don’t be rude to us.

The support plus is great place to learn more about Autism, ADHD, OCD, etc. It's also a supportive community that aims to enhance coverage on these topics and spread awareness. Visit SP+ by clicking HERE.

Fill in this interest form if you would like to be interviewed for this series, or interview someone else. Thank you❤️





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User Profile: AffyAvo
AffyAvo April 4th, 2022

❤️

This is awesome! Thanks to everyone who participated!

User Profile: Sunisshiningandsoareyou
Sunisshiningandsoareyou April 4th, 2022

@MyNameIsNicole

Thankyou for putting this together, Nicole. You've been doing fabulous. ❤️

@wonderfulRainbow817 @markx23 @sunshinegiraffe123

I appreciate y'all sharing about your experience with autism so honestly. Each of you's have been ever so supportive of the community and it truly is commendable. Thankyouu Rainbow, Mark and Allie. More love and strength your way. ❤️


1 reply
User Profile: wonderfulRainbow817
wonderfulRainbow817 April 9th, 2022

@Sunisshiningandsoareyou

Aw, thanks Sun! I am glad I could share my experiences to bring awareness about it!

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User Profile: audienta
audienta April 14th, 2022

@MyNameIsNicole, @wonderfulRainbow817, @markx23 and @sunshinegiraffe123

Thank you for posting and answering these very interesting interviews! 💜 Some of your answers really made me smile - all of you are so amazing human beings! I wish you all the best.

Take care

audienta

User Profile: ThoughtfulBlossom
ThoughtfulBlossom April 14th, 2022

@MyNameIsNicole

Thank you so much for conducting this interview! 😊

@wonderfulRainbow817 @markx23 @sunshinegiraffe123

I am so so sooooo proud of all three of you for taking the time to spread autism awareness across 7 Cups, as well as in your offline lives. It is really important to spread the word and reduce the stigma induced by the false ideas about autism. I agree that autism is a gift, and it is not an obstacle. By speaking it, you all are showing that you are not ashamed of who you are as human beings, and that really warms my heart. Great job, everyone! ❤️