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Autistic Sibling

I have a sibling who has severe autism. My parents never did anything to help him become independent. I don’t want to care for him when they’re no longer around. I say this with a heavy feeling of guilt but I often think it’s unfair to be given such a responsibility and I find him a big burden. I don’t know what to do about this, I feel trapped.

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User Profile: Amanda84
Amanda84 March 8th

@brightSpring4247

I'm sorry you are feeling so burdened and guilty.

You could look into some assisted living facilities, should that time come, where they are supports for your brother, but bare in mind, the difficulties and the isolation he must experience on a daily basis through no fault of his own 🧡

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User Profile: CarolinaQueenBee
CarolinaQueenBee March 14th

I understand your frustration my step daughter is none verbal and it’s not easy my step daughter went through it since she was a baby to now and she’s learned words since I been there but now again she’s not talking or anything and it’s like I build her up to be independent but when the new girl he moves in doesn’t do anything for her or with her I feel like she fell behind so I understand your frustration.

User Profile: CarolinaQueenBee
CarolinaQueenBee March 14th

I understand your frustration my step daughter is none verbal and it’s not easy my step daughter went through it since she was a baby to now and she’s learned words since I been there but now again she’s not talking or anything and it’s like I build her up to be independent but when the new girl he moves in doesn’t do anything for her or with her I feel like she fell behind so I understand your frustration.

User Profile: theboymoana
theboymoana March 15th

@brightSpring4247

no matter what do some people never will be independent and need support 

there other people can take your brother he deserve be where he cared for and not called burden for how he born

adult fostering 

group homes

In home carers

should learn about them places so can take time find good home for him

User Profile: mimi33i
mimi33i March 19th

Same situation.

User Profile: awesomeOcean1430
awesomeOcean1430 March 19th

@brightSpring4247 I am sorry to hear you are going through that. I completely understand your feelings, my younger brother is autistic as well.

I was wondering if you’ve listened to the telepathy tapes? It may help with ideas.

I was wondering if you’ve listened to the telepathy tapes? It may help with ideas.

User Profile: Tetravulren
Tetravulren April 3rd

I'm autistic, if your parents won't do it for him then you have to at least try to. However painful it may be, the longer they don't help him gain independence the more dependent on them he'll become and the fact that you're capable of reaching out like this tells me that you're also capable of doing this for him. My suggestion is (I'm saying this because it worked on me) start slow, do fewer and fewer things for him. By having to do more for himself his mind will start to figure out how to do so and eventually form muscle memory. I'm no psychologist so don't rely on my advice too much, I'm merely trying to help. Good luck.

User Profile: maryamehab
maryamehab April 3rd

I also have autistic, non verbal twin sisters. Technically I'm the one taking care of them like 90% of the time. Doing their daily stuff and responsible for their medicine. I feel the same but not only from taking care of them but for them being the ones needing care "more than me" like I'm not important too. But I really get what you mean. Just know that even if you take care of him it was never your responsibility. You're doing it because he's your sibling and that's a good thing.