POTS is a Real Disability! Questions? Ask Here!
What is POTS?
Postural Orthostatic Tachycardia Syndrome/ Postural tachycardia syndrome (PoTS) is an abnormal increase in heart rate that occurs after sitting up or standing. Some typical symptoms include dizziness and fainting.
My Story - Living with POTS
I am Joy. I am a listener here on 7cups and i am not without my own struggles, i have many health issues mental and physical and i live with POTS. There are good days - there are pretty rough days where every movement I make even just a turn of the head, makes me lightheaded and faint. I have chosen this time to tell you of my health because I believe the awareness of this illness is important.
You Can Ask Anything!
If anyone has any questions please ask away - I can't speak for anyone else's experience but i can explain mine. Whether you are a sufferer yourself, or you have a family member or friend that you are unsure how to support or just want to know a lil more. Please ask - No question is wrong - No judgement here!
Below are a few bullet points about POTS…
- In PoTS, the autonomic nervous system does not work properly. There's a drop in blood supply to the heart and brain when you become upright and the heart races to compensate for this.
- You may have a range of tests to confirm a diagnosis and rule out other conditions, including: a tilt table test, active stand test and blood tests to read functions of organs
- Some people have mild symptoms, while others find the condition affects their quality of life. PoTS often improves gradually over time, and there are some medicines and self-care measures that can help.
- POTS can also affect your mental and emotional health, and have a negative effect on your self-esteem.
Below is a summary image of a few of many symptoms people experience with POTS…
https://www.potsuk.org/ - PoTS UK is at the heart of beating PoTS
Remember....Please ask anything you wish - No question is wrong - No judgement here!
Stay Strong and Keep Fighting!
-Joy <3
@JoyfulUnicorn
It's so nice to see something like this here :)
@PhilosophicalLion1320
I am glad you like the post i hope it helps many <3
@JoyfulUnicorn Nice post. I don't have pots but I have nuerally mediated hypotension. Thanks for the link to pots UK. It has a lot of good information.
@adventurousBranch3786
You're most welcome Branch! I hope it helps a little and although you may not have 'POTS' the Dysonmia umbrella is very big and you are very accepted here <3
Stay Strong and Keep Fighting!
-Joy <3
I have POTS as well, caused by Ehlers-Danlos. It’s not easy. I understand ❤️
Hi @JoyfulUnicorn. What is the hardest part about POTS for you, whether it is physical, mental, or environmental? I have POTS and am having a really hard time right now.
I have POTS too, along with hEDS! Had no idea you also had POTS. :D
I don’t have POTS but I have a friend who has it and slight Ehlers Danlos. And I was just wondering (if anyone wants to reply) how has POTS affected your friendships and social interactions overall?
