Day 9: Alternative Therapies: Cupping therapy, Acupuncture, Support groups, Therapies, Swimming, Releasing emotions
Hey there, I have had chronic migraines since I was 11. They are so horrific now I'm barely able to manage some days. Along with that there is PCOS, DDD, arthritis, herniated disc, shoulder surgery on both, probably need a replacement. Fibromyalgia is the bane of my existence, to compliment the the chronic depression OF OVER TWENTY YEARS, PTSD, GAD, ANXIETY, STRESS, my great battle has been dealing with the fact that I also have Borderline Personality Disorder and that diagnosis has thrown me for a loop. Then there is GERD, reflux disease. I also had a malignant melanoma 25yrs ago so I have to be careful outdoors. I have no short term memory left, I used to pride myself on my memory, but no more. Between the fibro fog and Hashimotos thyroid I can barely finish a sentence let alone have a decent conversation. I'm probably forgetting somethings but , I think the above is more than enough.......baZ😎
@baZzchik54
You have a lot on your plate! Thanks for sharing with us
Day 6
Not sure if this is what the question is really asking for, but I would have told myself to keep pushing for answers, that the condition that can interplay with pretty much anything isn't anything common.
Day 6: If you could have told yourself something when you first remember these symptoms arising, what would you have said?
I would go straight to the doctor and tell them about the issues sooner rather than waiting for 2 months after my accident.
This or rather these illnesses, esp the migraines and fibro and of course the depression, and anxiety lol have really stopped me from living.... I am a tomboy, always athletic, into all sports which was always a saving grace from my depression. Years ago I found a way to somehow work while having an episode of anxiety or a headache and migraine. Now I have had to quit work which I loved , stopped the group sports as I couldn't handle the judgement on top of the pain. Now the pain is two-fold and the depression worse as I have also now dropped anything that I loved to do because of pain, I feel as tho my body "betrayed" me
Day 7
Biggest realization was probably just how sick I was. I kept trying with my former lifestyle and was so frustrated why I just couldn't do it anymore. I was feeling like I was a lazy failure at times. In reality what I was doing was way more than what most could do and certainly more than I should have been doing - I was just getting sicker and sicker because of it.
I'm so glad that you guys like this! :)
@alexlove ... Hey I just found this today. Is this limited to physical type illnesses? Or could it be chronic mental illnesses also? Maybe that's for another forum.... ? ~Platy
@cyanPlatypus6370
I personally feel like this space is for anyone with a chronic illness: physical, mental, or otherwise. Feel free to join in! We are here to help support you :)
Day 7: What is the biggest realization you have had?
That sometimes even during the worst time, migraines don't wait or try to be convienet for you or others around you.
Is the "list" still somewhere? I got behind... I believe I'm day 3 re my diagnosis. I have been accident prone my entire life so I was used to being in pain most of the time. My family dr called it about 7 yrs before I was "diagnosed" properly by many Drs a neurologist for the migraines and a rheumatologist and internist. That was I've twenty yrs ago now before my depression ran rampant.... And became chronic along with everything else
@baZzchik54
thank you for joining in. The list is on the first post of this thread click on page one (at the bottom) and it will be first post
Day 8
Future planning is really hard, because I just don't know.
When I was diagnosed I expected in 5 years time that I would be back to my former 'normal' plus some meds.
It's coming up on 2 years and my expectation for what my health will be isn't that high anymore. I do hope I will have learned to manage my condition better, recognize all symptoms more easily. In 5 years time a SC form of my medication might be available which I do expect to improve my quality of life; not just because of the IV issues, but also due to a more steady concentration of good working c1 inhibitor in my blood.
in 5 years time, I hope I am getting out of the house more consistently - similar to my current good periods, but year round. I hope to be working and have found the right balance for that, even if it means 1 day a week for a few hours plus some prep time.