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What do you wish everyone knew about your disability?

User Profile: vivelespatates
vivelespatates March 18th, 2017

don't be scared to break drown the stigma!

176
User Profile: Mellietronx
Mellietronx March 18th, 2017

ADD doesn't always mean you are dumb and hyper.

2 replies
User Profile: vivelespatates
vivelespatates OP March 18th, 2017

@Mellietronx very true!

User Profile: bgdave
bgdave March 24th, 2017

@Mellietronx, Your post reminds me a bit of the best selling book for ADD, "You mean I'm not Lazy, Stupid or Crazy?!" People that don't struggle with ADD can be pretty judgmental.I struggle with adult ADD and have heard some pretty judgmental statements from those who really have no clue about what it is like to have ADD.

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User Profile: professionalPerspective60
professionalPerspective60 March 18th, 2017

It's ABILITY that matters!

March 18th, 2017

I wish people knew that a physical disability is not only debilitating outwardly, but can create a lot of emotional hurdles. Emotional support by friends and family is crucial.

User Profile: Nessidy
Nessidy March 20th, 2017

I wish people knew that a person with disability which affends the communication isn't mentally challenged, doesn't have to be treated like a sensitive child, and doesn't actually like being alone.

1 reply
User Profile: Nessidy
Nessidy March 20th, 2017

@Nessidy *affects the communication, I did a typo.

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User Profile: AffyAvo
AffyAvo March 20th, 2017

How it feels in general. It goes more to the illness model - but how to treat it specifically would be really helpful too.

User Profile: BlueAirBall
BlueAirBall March 24th, 2017

I wish people stopped taking me as a lazy person. The most don't know how difficult life with pain can be.

User Profile: moonlightMittens7125
moonlightMittens7125 March 24th, 2017

Just because you cant see my pain, it doesnt mean it is not there.

1 reply
User Profile: moonlightMittens7125
moonlightMittens7125 March 25th, 2017

@justHurting02

@vivelespatates

That the "invisible" pain is killing me from the inside out and no one seems to care.

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User Profile: MKJart
MKJart March 24th, 2017

@vivelespatates

When I was in my wheelchair, everyone spoke REALLY LOUD and sloooowwww as if my legs not moving had affected on my ears. With a big grin I would always answer back in the same fashion just to mess with them.

1 reply
User Profile: IntellectualPenguin123
IntellectualPenguin123 March 24th, 2017

@MKJinMexico

Envisioning that made me chuckle. I hope those people got the point.

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User Profile: IvyJenkins
IvyJenkins March 24th, 2017

That the word 'special' or 'unique' sound degrading but in a positive way. I have a disability that's close to no big deal and when someone describes me as either of those words, it pisses me off fast, then I think of myself as a monster who's incapable of doing much.

User Profile: TransAm85
TransAm85 March 24th, 2017

Not everyone w/epilepsy is incapable of working/going to school. Many people assume that all people w/epilepsy are house bound for the rest of their life! No .. I can't even get disability/state insurance/SSI b/c I have worked and went to school my whole life so far. It is unfair to a point though b/c I still have partial seizures, but at a predictable time and w/the auras. But it is all controlled w/medication.

2 replies
User Profile: Michalty8
Michalty8 March 24th, 2017

@TransAm85 I wish people knew that anxiety causes a lot of pain and stress... Taking meds helps, but makes you feel dead on the inside, you feel like no one can help you. It's just really scary to be honest...

1 reply
User Profile: TransAm85
TransAm85 March 24th, 2017

@Michalty8 Yes. My mother has had that problem for like 40 years, but unfortunately she took a lot of it out on me. My husband has issues too, but turns to the beer instead of going to a doctor. Talk to people. Family or close friends or find a hobby/job that will take your mind off things. My mother is the type that whines to people about her anxiety/stress looking for sympathy on purpose. And she exaggerates it all. People just end up talking crap then. Go places to hang out on the weekends, movies, concerts, etc. Staying at home thinking about your problems just makes it worse. I hope you feel better at some point and soon.

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