POTS?
I’ve been lightheaded lately. I know it isn’t sleep, it isn’t dehydration, it isn’t malnourishment or low sugar, so I don’t know what it is. I know POTS can make you lightheaded standing up, and I’m wondering if that might be it? I have EDS, and I know that sometimes they go together. I’ve never actually fainted, but I might’ve come close one time? It was super hot out, and I had been walking around for hours, def dehydrated, and I lost track of time and started losing the people in my group and I had to pay extra attention to stay close to them and not fall. Eventually, I sat down, and it stayed like that. I got back up and went and got cool water with help, and then I felt better. I chalked it up to heat exhaustion or maybe even heat stroke, but now I’m not sure, maybe my heart was going too fast and I was about to pass out?
Anyways, anyone with POTS/knowledge of, ty for any input! Does it sound similar?
Also: I’ve kinda self-checked myself with the heart rate test, but I should do it again, more thoroughly. I get headaches sometimes, and I have actually noticed some bad circulation. I have a decent amount pointing to it, but no fainting, and I’m not certain about my heart rate change. My painful EDS symptoms did develop in middle school, so I don’t know if it’s just taking a while, or if it’s something else?
Currently self-checking 👉🫀
@thebendygirl The safest thing to do is always get checked by a medical professional. Self checking can be useful if you keep a record and then show it to your doctor. But please keep yourself safe, we always have to recommend the above.
Please let us know what they say.
@thebendygirl I have a related disorder to POTS. I do get lightheaded, and vertigo episodes. There were some tests used for my diagnosis. One is called a tilt table test. This was done for me by a cardiologist. I also did what’s called the poor man’s tilt table with another doctor who was able to diagnose me using that one. Some doctors don’t know about Dysautonomia. It’s important to find a doctor who is knowledgeable about it.
@adventurousBranch3786 yes, thank you! I did the one where you lie down and then stand up for 10 minutes and check during that, but I can just do heart rate, not bp. No POTS here, not enough change to count, but I do think it could be another type of dysautonomia, so I’m def gonna ask abt it
@thebendygirl you do sound very concerned, what do your parents or guardians think? It's important to get them involved especially at your age, because as a teen a lot of things are changing.
@MistyMagic I caught my EDS by self-checking and researching first, so I think that got me some credibility
they’re ok with looking into it, just gotta get the appt
@thebendygirl. I have the BP one.That’s what my doctor discovered during the check. It’s good that you re going to check into it. Hopefully your doctor can order some testing to find out what’s going on.
I agree with Misty, about checking with a medical professional, one who is helping you.
Lightheadedness can be caused by so many things. I've had similar symptoms die to anemia of different types, but you've said it's not malnourishment causing yours.
