CRPS/RSD
I'm just looking to see if anyone else on here has CRPS/RSD and would be interested in talking. I have it in my left leg and would love to get a mini support group together.
@DogLady93 - I don't know much about CRPS/RSD and don't have it, so I'm probably not what you're looking for, but I wanted to give this post a *bump* so others might see it! :)
I have CRPS in my left leg and foot and have been unable to use my leg or foot for almost a year now.
@enthusiasticTree1934 I empathise with you, CRPS is an extremely painful condition, many say it is the most painful. Do you have methods that help you cope? What has worked for you?
Listening - One Step At A Time!
I would love to have a mini support group because of this terrible disease
Sorry hear dealing with! Lived long time with. If wanna, I am ok with.
(Not fully sure how works her. Is ok share her exmsaple or maybe?)
Hey,
I have it in my entire body…
Just a head's up to look out for a post from the Disability Support Team recognising the world CRPS Day on November 4th. I will be posting an informapost about this extremely painful condition.
Make sure you sign up for the tag list here https://www.7cups.com/forum/disabilities/Checkinwithus_1053/2024TaglistDisabilitySupport_202464/ to be notified.
i have rsd
@shadowbonnie sorry to hear that, has anyone mentioned crps to you?
@MistyMagic yeah I'm pretty dumb i'm pretty sure we're talking about two different rsd's because for some reason they put the same Abbreviation for both of them
@shadowbonnie Hi Bonnie, let's check shall we?
Complex regional pain syndrome (CRPS) , sometimes referred to by the hyponyms Reflex Sympathetic Dystrophy (RSD) or reflex neurovascular dystrophy (RND), is a rare and severe form of neuroinflammatory and dysautonomic disorder causing chronic pain, neurovascular, and neuropathic symptoms. Wiki
Or there is now also
Rejection sensitivity dysphoria (RSD) is a problem that interferes with your ability to regulate your emotional responses to feelings of failure and rejection. While rejection is almost always unpleasant, people with RSD experience overwhelming levels of emotional pain, sometimes linked to ADHD.
So does that make more sense?
@shadowbonnie abbreviations change over time and some become more prevalent and commonly used. Which RSD affects you and how does it impact your life?
@MistyMagic Rejection sensitivity dysphoria
I have it in both my lower extremities. I've lived with it since 2003 and have a spinal cord stimulator (dorsal column). I would be interested in getting together a support group. Not sure how that works here.
@Webspinner you can post here or start your own new thread to see if there are others that share crps.
@MistyMagic
Thank you
@Webspinner Do you know why, or the trigger, was there an injury?
@MistyMagic
There was injury to ankle and that is what created the condition.
@Webspinner did you find that both feet were affected. Were both ankles injured? Or just one? Some people seem to find it spreads?
It was originally my right ankle within 3 days intense burning partway up calf and while foot after a few months it was thru that leg then spread to other leg and foot.
@Webspinner That sounds really hard to cope with, what helps the pain?
No only the right was injured in a severe sprain and hyperextension and that is what turned into CRPS. It did spread about 6 or 7 months later into left foot and leg. Now it is in both feet and both lower extremities. Lower back had nerve damage from surgery from dorsal column stimulator. It has been a challenge for sure and I would not wish this on anyone.
@DogLady93It’s great that you’re reaching out for support. Connecting with others who understand CRPS/RSD can really help. I hope you find a supportive group to share with and feel less alone. You deserve that.
@DogLady93 yes I have
