Things People Who Have Invisible Disabilities Wish You Knew

@ShadowFaerie @unassumingEyes @Sunisshiningandsoareyou @sadcat13 @Amanda84 @goldenduckling @mytwistedsoul @Tinywhisper11 @LovemyMoonflowers @GreenLime3141 @7Bear7 @Phoenixthepoised @Torean @GentleHealingInitiative @cyanessence @YourCaringConfidant @CaringEzra @NobleSeeker @fossilfellow @BastionKnight @trueconfidant123 @safeplace288 @lovingCat6978 @reservedOwl321 @dapperNest2125  @Creamyyy @naturesbeauty1234 @bubbleSummer9800 @warmheartedHuman836 @Mansbestfriend @Paliloveyourself @Magicpawsoffuture @SelfCareMatters @TovaCares76 @sabeyesofblue3535 @AiluraTheCat @charmingApple8098 @luvArisu @BlueDarkAurora @curiousbookishness @sympatheticPlace3743 @musawva @KindleMissie @WellsFiction @Angelanj @SlappyMcGee @SunshineJazz @LexListens2025 @Heather225 @agreeableSkies9889 @HopeAura

I’m adding a taglist to start, but this post is open to absolutely everyone! <3

@jesusredeemedme2425 Looking forward to this thread ❤️

I am really good at some things but also truly do struggle with other things.

@jesusredeemedme2425

So I have POTS (Postural Orthostatic Tachycardia Syndrome), which basically means gravity hates me. My blood vessels don't contract properly and move the blood around my body, which means when I stand up or change position, all of the blood goes straight to my legs, which makes me dizzy, and sometimes pass out. The thing is, I spend the day putting so much exercise into staying upright and conscious, on top of fatigue, but I go looking completely "normal." So many people with invisible disabilities look completely fine, but are actively fighting their bodies. If you learn one thing, make it be this we are trying our best. When a person has an invisible illness, they often will cancel plans, leave early, sit, or do other things to accomodate them. When you interact with someone you know has an invisible disability, know that just because you cannot see it, does not mean it is very real. Try not to judge them, and listen to what they say, and if you want to ask questions or are curious, I'm sure the person would be more than happy to explain it, just make sure you're respectful. Like rather than asking "why are you so tired all the time?" or "you look fine, are you exaggerating?" ask things like "I noticed you have had less energy recently, I was wondering if there is any way I can help accomadate you or change anything?" I think the best place to learn about them, for me at least, is tik-tok. Find a user who has had direct lived experience with it and is sharing their story. But just remember, just because someone looks healthy and normal, does not mean that they are. Try to have empathy and not to judge! :)

@jesusredeemedme2425 I feel like a lot of times anger is a common part of invisible disabilities because of frustration and a lack of understanding in others. Sometimes when we're angry its not at another, its an invisible anger at the situation we've been put into often times against our will. So basically I'm saying, be patient, and understand the angers is coming from a place of desperation. 

@jesusredeemedme2425

As a person with undiagnosed POTS and ADHD i want people to know that my tired is not as theirs. I want them to know that I m trying but I cant make it. Don't judge me when I zone out, want to sit down or anything. 

As a person who has no support because my parents dont believe me and I havent talked to anyone else coping with POTS and ADHD is NOT easy.

Please understand me

Okay.. i do have spinal issues which is at critical level. Short story to convey the reason behind this, i was in highschool where while cycling back home was struck by a drunk driver, that cause my c1 c2 vertebrae dis allignment. But it remains hidden for improper treatment and caused dislocation slowly chock my spinal cord at very start. It took 5yrs to finally realised why im getting heavy legs, and less control left hand and getting unconscious randomly kind of behaviour. When i come to know my most of the body nerves gone nuts. But just to stop further damage i had to go t through a critical surgery which eventually fixed my neck c1 c2 with nuts and plates.

So now im a living robot who can't turn his neck like normal people and because of already damage nerves my body is stiffed a walk little like robot or a drunken guy. I can't lift weights and can't even put on weight, i still have difficulty with left hand coordination i don't have enough money to do continue physiotherapy.

I don't need any sympathy because its been over 10yrs for the surgery and im working normally despite this limitation. Im now earning enough to take care of my parents.

All i want to know if you see a person like this don't judge them by there way of walking, not everyone are drunk some does fighting with there own flaws. Those people does have self respect and they want to see themselves as normal person as well