Chronic Illness x7
Hello 👋🏼 I’m Rachel - 33 years old from Wisconsin and living with my husband of 4 years and our 2 fur babies. I wanted to write a little intro to connect with others that might share some commonalities with me. In May of 2020 I was diagnosed with my first chronic illness and my life has been going in a downward spiral ever since. I now have 7 diagnoses/chronic illnesses, I’ve had multiple brain surgeries, I’ve been hospitalized 12 times, I’ve been fired from 4 different jobs, and we just had to file for medical bankruptcy. My diagnoses/illnesses include: IIH, migraines, TBI, stroke, tachycardia, type 2 diabetes, liver disease/NASH, major depressive disorder, and peanut allergy/anaphylaxis. I also have a ventriculoatrial (VA) shunt that drains excess fluid from my brain down into the right atrium of my heart. Let’s connect and support each other if we share anything in common (or you just need a friend 😊)!
@RC9520 Welcome to 7 Cups! And welcome to the Disability Support Community too 🌞
Thanks for introducing yourself, I am sure you will get a lot of replies.
@RC9520. Hi there, nice to meet you.
@RC9520
hi we have chronic illnesses too. not same as your other then a few we have type 2 diabetics due to can not take the med they start most on. we been on insulin but it still not low as they want. have diabetic neuropathy and trauma neuropathy too. also chronic traumatic brain injury, Fibromyalgia and the list goes on and on. we now 54yr old for us everything started around age 30yr and we been on SSI ( government disability) since we was around 32yr. we also have learning disabilities and mental illness. bi-polar, cptsd, anxiety so long list in pain 24/7
Welcome! I've had lifelong illnesses but new ones have developed and some have gotten worse.
I have a job with very flexible hours.
I am truly sorry all that happened to you, Rachel. 😔 It's not right...not at all.
Can't imagine what your husband goes through in dealing with the fallout from all those conditions.
I have chronic conditions also, but I gotta be honest here: they are nothing like yours. My main one does not have a firm diagnosis yet, but the best guess ATM is "vestibular migraines". (It was previously Dx'ed as Meniére's disease. Go figure) It & my chronic tendinitis limit my life the most. They aren't the only conditions I have but they are the most restrictive &, at times, the most crippling.
No pets here as I'm not up to the responsibility. If I could own one, it would be a good medium-sized dog. He wouldn't have to look show-ready or even handsome; all I would require is his loyalty & enough intelligence to not go running out into traffic.
All those disabling illnesses & you're still pretty, too...ain't that the way? I've seen it more than once. Some days I'm completely messed up, but you wouldn't necessarily know it when I'm walking around. Have you ever had a healthy person say "but you don't look sick"? 🙄 I've heard that... If they only knew.
I’ve had so many people say to me — OH YOU DONT LOOK SICK— if they only knew! I have a list that is too long to type everything !
It starts with Avascular Necrosis, Grave’s Disease, Lung Cancer with Brain Mets, SAIDH, Pneumonitis, Metabolic Syndrome , Adrenal Failure . Low Potassium, High Sodium, CHF, Neuropathy, Edema, Partial Paralysis, and so much more!
So I totally feel your pain. I hope you are having a great day today and things are going well for you. I hope people are treating you right. And your mind is your strongest ally! Don’t forget that! I have to tell myself that quite often, this morning I had to remind myself! of that exact thing!
@RC9520 Hi Rachel! I'm Mattie. First of all I really love your sunglasses! I'm so sorry you're going through all of that. I'm 30 now, but I was diagnosed with a rare disorder when I was nine years old. I've received therapy through infusions over the last twenty years. It's a lot to go through, yet I'm extremely grateful for the people in my life. I'm always here if you need a chat :)
Hi! I'm also from Wisconsin and my name is Savanah and I'm 27
@Spepper1997 welcome to 7 Cups and the Disability Support Community.
I was diagnosed with Hashimoto(autoimmune disease) that caused me to get another diagnosis of hypothyroidism.
Hi there. Nice meeting u i’m Lili from France (but i speak english… well, i try to)
@Liliinthesky hi there Lili, nice to meet you! Welcome to 7Cups and the Disability Support Community.
Great to see you have found the forums too 🦋
Hi MistyMagic
Hello,how r u now? I wish u health and happiness