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New Forum Section: Migraine Awareness & Support

User Profile: Hope
Hope August 31st, 2020

Hi everyone! I hope you are well. According to migraine.com, Migraine is the third most prevalent and sixth most disabling illness across the globe. Migraines are something many experiences and it can be challenging to carry out day to day tasks and migraines can have an impact on one's mental health. In order to better support people with migraines, we are starting this forum space where people experiencing migraines can receive support.

Migraines: Brief Overview

Migraine Support Check-in

Do you experience migraines?

mailWe are looking for dedicated members and listeners who can support this forum space. If you are interested in supporting this forum then please find more information here.

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User Profile: Tyedyedbutterfly65
Tyedyedbutterfly65 August 31st, 2020

@Hopeyes Great add !!! Migraines are horrible as a long time sufferer myself ...

User Profile: BlueSkies2563
BlueSkies2563 August 31st, 2020

@Hope

Very pleased to see this thread! As a long-time migraine sufferer, I've found it's difficult to find support from those who've never experienced a migraine. 9 times out of 10 I get the "The headache will pass!" which downplays just how much suffering one goes through with a migraine. I know I always want to shout "It's not just a headache!" Thanks for providing this space for support!

User Profile: cyanPlatypus6370
cyanPlatypus6370 September 1st, 2020

I am not sure that I understand, or rather I don't think I fully understand. This is a new thread? no, it seems bigger than that. Yet it does not seem to be a new sub-community because you would say that and it would show up in the list of sub-comm to join. This #MigraineAwarenessandSupport is a new section of the forum? What does this mean, please?

I've had some migraines and thankfully I know that mine are not as debilitating as some others experience. I'm not sure quite how I could help, but while this is my (m) account I am a (L)-adult also - so I could help with compassionate listening? or compassionate responses? (like in the forum??) Hmm..... what do you think? ~ Platy

4 replies
User Profile: AffyAvo
AffyAvo September 1st, 2020

@cyanPlatypus6370 There are forums that are not subcommunities. The forums had sections, before subcommunities existed and for a while there were only a few subcommunities.

Now, the majority of forums also are part of a subcommunity so it's less obvious of those that are not. There are other areas like this though, for example, Autism Spectrum Disorder isn't a subcommunity, neither is the OCD/BFRB community (which is probably even more confusing with having community in the name).

4 replies
User Profile: cyanPlatypus6370
cyanPlatypus6370 September 2nd, 2020

@AffyAvo Yes, I know. That didn't really answer my question. So the topic of Migraine Support .... how is it new or different now? Again what does it mean that it has it's own 'forum section?' I was part of 7cups before sub-communities even existed so I do remember when there were just 2 or 3. We still do not have a "grief" or "grief and loss support" type of sub-community. (Although I suppose some could argue that the current events sections and group chat COULD fall into the grief/loss support. I guess it would for certain things, for me.) I really could use much more grief/loss support right now. ~ Platy

4 replies
User Profile: AffyAvo
AffyAvo September 2nd, 2020

@cyanPlatypus6370 It sounds like you're more asking why, rather than a explanation of forum sections. Hope or someone else would have to explain that. In the past, migraine theads were within the Disability subcommunity (and Chronic Pain & Illness before that).

4 replies
User Profile: cyanPlatypus6370
cyanPlatypus6370 September 2nd, 2020

@AffyAvo I don't know who up-voted that reply, but I won't be. I am not asking for rational or reasons for. I do not understand many things about 7cups but I just have to accept that I don't know "why" on many things. I AM asking for an explanation of forum stuff on 7cups. I do not understand the forum very well and I thought you could help. If you are unwilling to answer my Q, please just say so and not guess that I am asking a question that would be more properly asked to someone else - like @Hope for example. The forum is complicated enough (for me) so, yeah. I do not mean to be mean or argumentative, Affy. I just really don't understand. (and I had no idea there were threads about migraines on 7cups before - nor would I have known where to find them.) Good night. ~ Platy

4 replies
User Profile: AffyAvo
AffyAvo September 2nd, 2020

@cyanPlatypus6370 Sorry, I incorrectly interpreted what you were asking, you seem to navigate the forums well to me from what I can tell by your posting.

Migraine Awareness & Support ie. https://www.7cups.com/forum/MigraineAwarenessSupport_203/ is a forum section that was created within the last month. Various migraine threads can now be added to this section.

All of the forum sections (whether they are part of a subcommunitee or not) can be found here - https://www.7cups.com/forum/

In general, one can search the forums, although the search tool is slow and very basic. Typing in migraine to the search (top right hand corner once int he forums) will bring up every thread with the word migraine in it.

4 replies
User Profile: cyanPlatypus6370
cyanPlatypus6370 September 2nd, 2020

Hi Affy, Good morning! and thank you. Links are super helpful for me in trying to get around 7cups and find things (or even find things again! like when I have posted before). I hope you are having a great Wednesday :) Thank you for your help :) Platy

P.S. @AffyAvo, I did not know that about the search at the top of each page! I mean I've seen it on a lot of pages, but yeah. That's cool. My computer does not need any help being slow (ha) but maybe, just maybe, that space could help me find where to post things. Like even last night I was trying to post something in the "Grief and Loss" category and I eventually got sick of searching for where to post it - and just picked some place. (shrugs) Have a good day, Affy :)

4 replies
User Profile: AffyAvo
AffyAvo September 2nd, 2020

@cyanPlatypus6370 I'm glad I could help, even if it took me a bit. I hope your week goes ok and you and your family are able to support each other well.

4 replies
User Profile: cyanPlatypus6370
cyanPlatypus6370 September 10th, 2020

@AffyAvo thank you for being persistent and not giving up with/for me. My week? Well, my extended family came here to my hometown = very good. They stayed we had the *short!* visitation and also very short burial/graveside service. Half of those who came left the next day (Friday) and the other half left on Saturday. It was very short. I appreciate these (my dad's side) family members so much. I am thankful that they drove the many miles and hours that they did! My aunt and uncle even drove all the way up here from Texas (near Austin)!! I just wish they could have stayed longer. I don't get to see them much - not anywhere near enough according to me - so I have to try to specifically enjoy each minute (or at least each hour) while they *are* here. How are things going for you, Affy? heartsending you hugs!! Platy

3 replies
User Profile: AffyAvo
AffyAvo September 11th, 2020

@cyanPlatypus6370 I'm glad you had good quality time with your family. Deaths this year have so many extra challenges thrown in.

I haven't been feeling great this week, although I feel better today than yesterday so hopefully things are improving for a good stretch.

2 replies
User Profile: cyanPlatypus6370
cyanPlatypus6370 September 11th, 2020

@AffyAvo - Do take care of you, dear! (Do I know you enough to call you 'friend,' yet? wink ) Thank you - yes deaths whether COVID related or not here in 2020 have all these extra protocols (that are often needed) but that can make the already hard process of grief, even harder sad Anyone else looking forward to two thous twenty-one? (LOL - tongue in cheek) heart Platy

1 reply
User Profile: AffyAvo
AffyAvo September 12th, 2020

@cyanPlatypus6370 Yes, I think of you as a friend. Fingers crossed for a vaccine or some really effective meds, but with how diverse of effects are seen with this virus I think a vaccine is what's needed! Once that's done it would be great to have some much more relaxed family visits!

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User Profile: lovehummingbirdsCindy
lovehummingbirdsCindy September 2nd, 2020

@Hope

Yes I do, including the the kind that cause momentary blindness (forget the name - optical, something like that).