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Things People Who Have Experienced Grief Wish You Knew

If this is part of your life story, please share your insights! What would you like the rest of us to learn? What should we know about people in this community? How would you like people to interact with you? Should people ask questions? What’s the best way for people to learn about this? Do you have any resources (books, movies, YT videos, etc) that will give us greater understanding and empathy and kindness toward people who experience the same things you do?

If you’re not on this journey, we welcome you to listen, learn, and ask respectful, good-faith questions! Open-ended questions are highly encouraged, as they give people the space to share their unique experiences in their own words. While this is a safe space to learn about things you’ve never experienced, please remember to be sensitive, and avoid sharing harmful stereotypes or debating someone's lived reality. If you have a question, ask it with empathy. If someone gently corrects you, please be open to learning. Let's have a gentle, fun, friendly conversation where we support one another, because it takes all sorts to make a world!

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User Profile: jesusredeemedme2425
jesusredeemedme2425 OP March 25th

@ShadowFaerie @unassumingEyes @Sunisshiningandsoareyou @sadcat13 @Amanda84 @goldenduckling @mytwistedsoul @Tinywhisper11 @LovemyMoonflowers @GreenLime3141 @7Bear7 @Phoenixthepoised @Torean @GentleHealingInitiative @cyanessence @YourCaringConfidant @CaringEzra @NobleSeeker @fossilfellow @BastionKnight @trueconfidant123 @safeplace288 @lovingCat6978 @reservedOwl321 @dapperNest2125  @Creamyyy @naturesbeauty1234 @bubbleSummer9800 @peachThinker662 @warmheartedHuman836 @Mansbestfriend @Paliloveyourself @Magicpawsoffuture @SelfCareMatters @TovaCares76 @sabeyesofblue3535 @Ailuraphilelove8tear9 @charmingApple8098 @luvArisu @BlueDarkAurora @curiousbookishness @sympatheticPlace3743 @musawva @KindleMissie @WellsFiction @Angelanj @SlappyMcGee @SunshineJazz @LexListens2025 @Heather225 @agreeableSkies9889 @ConstellationSystem

I’m adding a taglist to start, but this post is open to absolutely everyone! <3

User Profile: fossilfellow
fossilfellow March 25th

@jesusredeemedme2425 looking forward to this thread 🤍

User Profile: trueconfidant123
trueconfidant123 March 25th

@jesusredeemedme2425

Grief isn't always publicly expressed. 

User Profile: Heather225
Heather225 March 25th

@jesusredeemedme2425

People in grieving often want to talk about their person. They want you to keep using their loved one’s name and share memories, rather than acting like they never existed. Ask them questions about the person they miss. Chances are they want to talk about them.

User Profile: GreenLime3141
GreenLime3141 March 26th

You can still have grief even if your person hasn’t died.

User Profile: KIMSLILSIS59
KIMSLILSIS59 March 26th

I am 67 f. I have 6 kids all grown. One of which was abducted by his father when he was only 2 years old.

In 1990 I was diagnosed with lupus. Then 6 months later, thyroid cancer. They got it so that was a positive. Then, 2 months later I lost my oldest brother to aids. Then the hero in my life, my daddy. That was horrible. Ihad to check into a mental hospital due to that. Still suffering from that. Then my older sister 2 years later. Then my mother 11 years ago. Then...... which is hard to even type. My sister....I can't even say her name. She was always there for me no matter what. She understood me. She accepted me no matter what. She was always there to help. It is taking the strength of a thousand men to type this. She is ......I still can't say it. It has been two years in March. It seems like yesterday. I became an addict at 60 yrs of age. I couldn't go and see her that tragic day because I didn't want her to see me in my addiction. Now, I will never forgive myself for not being there. I can't mention her name or look at pics of us or anything. I can't say that she....you know. Cuz then in admitting a fact I don't want to face. I suffer from depression, and have all my life due to childhood trauma. Raped at 11, kidnapped twice as a teen, raped again at 14 by 5 men, raped again that same year by two men. My stories are long and painful and unfortunately true. Now at 67 I am an addict for the first time. I am in my first verbally abusive relationship. I have lost my family and friends due to my addiction. I am currently disabled due to hip surgery last year. I just feel like I am useless, insignificant and I feel like death would be better than life sometimes. I am not currently suicidal. I just sometimes think life is too hard to live anymore. I'm very lonely. I could be in a crowd of a thousand people and still feel very alone.

User Profile: ScrabbleBrain
ScrabbleBrain March 26th

People grieve in different ways and that's ok. I felt so bad, mine took about a year to process. I didn't realise, I wasn't unfeeling. I was numb.

I felt cold for not crying. I felt like I was on medication, it just seemed like a distorted reality that I couldn't process.

My biggest issue was people hugging me when it's not what I wanted. I felt crowded and it's like people were expecting me to fall apart and when I didn't put on a show, they were disappointed..

My cousin reached me and said, it's normal, don't worry about feeling a certain way and that helped but I still felt guilty.

Eventually the tears came out in public at the wrong times, everything seemed to trigger my emotions, that were put on hold.

I found a poem that spoke to me as well.

6 replies

@ScrabbleBrain Maybe it's just me who feels this way, but who cares how long it took you to cry and process. Those feelings you felt and the grief finally caught up to you and your body knew the exact moment it needed its release. If you ask me, you cry away. *offers shoulder and my shirt for you to wipe your slobber and drool and tear* (I have to throw my humor in with my serious. 😉) To me there's no "wrong time" to cry. There's no facade you have to put on. The people who love you will get you. They will understand you and encourage you. You said it perfectly 👌-- we all grieve differently! That's the truth. Who cares if you didn't grieve within a certain expected time frame or how others thought you should. That's personal to you and nothing wrong with you at all. Again, maybe it's just a Desiree thing me thinking this. I think you're perfectly fine. 😀

1 reply
User Profile: ScrabbleBrain
ScrabbleBrain March 27th

@YourCaringConfidant Thank you :) You are such a beautiful tonic :) It was a long time ago so I was a lot naive. I didn't really understand much of anything let alone grief.

I'm not even sure anyone called me out on it but maybe I was so used to being judged and scrutinised I felt their eyes on me anyway, who knows really.

I do what you do too, inject humour, I can't help it either. I guess it's a way to normalise and shrug off vulnerabilities :)

Way back when my communications skills, consisted of observing and not talking much, now I'm older, I can piece things together better :)

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User Profile: RunningMachine
RunningMachine March 28th

@ScrabbleBrain

I struggled with grief for a few months after birth my parents passed away inay 2017 within 8 days of each other. I had moved in with them to care for them for the previous 18 months with the 6 months being daily shuttles between the hospital and respite home my father was in. Dealing with the estate wasn't overly painful as my mum I particular had crossed every T and fitted every I si it was relatively painless. I only just returned back I to full time work when literally a week or two later I had my 2nd pulmonary embolism in early Nov.

It has got a little easier over the year since but the emotional toil from both had left it's toll leading to me shutting down and isolating myself compounded by emotional dysregulation from ADHD.

I started talking with a therapist last week, I'm not going to be easy but hopefully will start looking forward to life again in time.

3 replies
User Profile: ScrabbleBrain
ScrabbleBrain March 28th

@RunningMachine You are incredibly strong to deal with all of that and your own health too. I hope therapy helps you to prioritise your needs after being there selflessly for your family.

It's very draining to just give yourself and deal with any emotions that get thrown your way. Medications that give people mood swings or unanticipated reactions.

Take care of yourself and if at any time you need to crumble, give yourself permission :)

2 replies
User Profile: RunningMachine
RunningMachine March 28th

@ScrabbleBrain

Thank you, plenty of wobbles along the way but life hasn't given me a choice to be any other way.

1 reply
User Profile: ScrabbleBrain
ScrabbleBrain March 28th

@RunningMachine It does seem to keep us on our toes :)

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User Profile: KIMSLILSIS59
KIMSLILSIS59 March 26th

@scrabblebrain

What was the poem?

1 reply
User Profile: ScrabbleBrain
ScrabbleBrain March 26th

@KIMSLILSIS59 I don't know if I'm allowed to post it. It's by Joanetta Hendel.

Don't tell me that you understand

Don't tell me that you know,

Don't tell me that I will survive

Or how I will surely grow.

 

Don't tell me that this is just a test

That I am truly blessed

That I am chosen for this task

Apart from all the rest.

 

Don't come at me with answers

That can only come from me,

Don't tell me how my grief will pass,

That I will soon be free.

 

Don't stand in pious judgement

Of the bounds I must untie,

Don't tell me how to suffer

And don't tell me how to cry!

 

My life is filled with selfishness,

My pain is all I see,

But, I need you now,

I need your love, unconditionally.

 

Accept me in my ups and downs,

I need someone to share,

Just hold my hand and let me cry,

And say, "My friend, I care."

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User Profile: KIMSLILSIS59
KIMSLILSIS59 March 26th

@scrabblebrain

Thank you so much! Unless you have lost the same person that I have lost you will never understand.

1 reply
User Profile: ScrabbleBrain
ScrabbleBrain March 26th

@KIMSLILSIS59 You're welcome :) Yea it's one of those things, no matter how well meaning people's intentions are, everyone is different, some want space, others want people.

Be sure to take care of yourself :)

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User Profile: freshRainbows4732
freshRainbows4732 March 26th

@jesusredeemedme2425


I'm sharing this because I've lived it. And there are things I wish people had understood.

1. The day it happens, everything is technical.

You're suddenly dealing with clothes, the funeral home, the budget, what outfit goes on the body. You just move through it in a fog. The real weight hasn't hit you yet. So when people say "you're being so strong," we're not. We're just on autopilot.

2. The wake is a performance.

You stand there for hours, thanking people, shaking hands, but you're not really there. It's like you're watching yourself from somewhere else. Don't expect us to make sense. Don't take it personally if we seem distant. We're just trying to get through it.

3. The burial is when it becomes real.

Watching the urn go into the ground, that's the moment it sinks in. You'll never see that person again. Only memories are left, and they're not enough, but they're all you have.

4. What we really want, in those first days, is for everyone to leave.

After two days of people and whispers and food we can't taste, all we want is to go home. To the silence. To the empty chair. To the toothbrush still in the cup, the slippers by the bed. We smile and we endure, but honestly? We're just waiting to close the door and finally be alone.

5. The hardest part starts after everyone goes home.

The funeral ends. The flowers die. The calls stop. And that's where it really begins. Not in the ritual, but in the mornings after. The pain shows up when it feels like it. It doesn't ask for permission.

6. There's no right way to cry.

Sometimes you don't cry at all, and people think you're cold. Sometimes you cry in secret so no one sees you as weak. Sometimes you cry in front of others and they look at you like you should be over it already. But there's no deadline for this. Please don't act like there is.

7. Cleaning out their things is brutal.

It feels like you're erasing them. You take a whole life and fold it into boxes, into storage, into the trash. You hesitate over every little thing. A sweater. Some notes. A pair of glasses. To keep it feels heavy. To throw it away feels like letting go of something you can't name. Just know that this phase is harder than it looks.

8. Seeing someone "replace" them is devastating.

When someone else sits in their chair, cooks in their kitchen, it hurts. Things that were once done their way are now done differently. Not wrong. Just different. And still we criticize, because every difference feels like a small death.

9. Grief finds you when you least expect it.

You can deactivate the phone to avoid their photos. You can try to control it. But grief finds you anyway. In a color. In a smell. In a song. In a place where you once stood together.

10. The phone still haunts us.

There was a time when the phone rang at a specific hour, and we knew it was them. Now it doesn't ring. But sometimes it does. And when it rings, we run to answer, our heart already halfway to believing. And on the other end, it's not them. It never is. And still, after all these years, we run.

11. Time doesn't heal. It teaches.

Years pass. It doesn't hurt as much, not because I've forgotten, but because I've learned to live with it. The world keeps moving. But the longing doesn't leave. It changes. It softens. It becomes something else.

12. What I've learned, what I wish you knew.

Grief is not something you overcome. It's something you make room for.

The silence after the funeral is louder than the funeral itself.

People will say the wrong things. Most mean well. You don't have to forgive them right away.

You can laugh and still be grieving. Joy is not a betrayal.

Moving forward is not the same as moving on.

The phone will ring and it won't be them, and your heart will break a little every time. This is not weakness. It's love that has nowhere else to go.

1 reply
User Profile: mytwistedsoul
mytwistedsoul March 27th

@freshRainbows4732 This... 💜

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