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Welcome in May!

User Profile: MistyMagic
MistyMagic May 2nd, 2025

May! 

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Now for most of us in the northern hemisphere we can look forward to longer days and more warmth. 

I love May. Still beautiful blossoms, less hayfever, and less rain!

  • What are your plans for May?
  • Does the heat if warmer days help support you?
  • Do you have any holidays planned?

  • Any tips for making holidays run smoothly and without problems?
  • Are you a Star Wars fan?

Wouldn't it be great to have 'the invisible force' helping us?

May The Force be with you!

20

@MistyMagic

  • What are your plans for May?

no specific plans for me besides finishing up the school year smoothly lol

  • Does the heat if warmer days help support you?

it feels better than the cold and makes pain more tolerable but it definitely gets hard with my pots so  have to be really careful and make sure I keep up on things like water intake when it gets hot

  • Do you have any holidays planned?

sadly no plans until end of June, but once we get there I get to go to California and visit Disneyland with friends

  • Any tips for making holidays run smoothly and without problems?

make sure you know what works for you, listen to your body, stay hydrated, monitor your body temp, be careful.

  • Are you a Star Wars fan?

no but I'm learning a lot about star wars from my boyfriend lol

3 replies
User Profile: AffyAvo
AffyAvo May 3rd, 2025

@SmollPeridotsBreakdown Have a great end to the school year and California sounds like a lot of fun!

User Profile: Tinywhisper11
Tinywhisper11 May 4th, 2025

@SmollPeridotsBreakdown woohooo! That's a great way to end the school year💖💖 I hope you have the best time evvverrr💖

User Profile: MistyMagic
MistyMagic OP May 4th, 2025

@SmollPeridotsBreakdown Thanks for joining in and sharing. I can't wait for June either. Your plans sound great. Hope your month goes well, and good luck to all.

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User Profile: stormieandpaws
stormieandpaws May 2nd, 2025

@MistyMagic

  • What are your plans for May?

well we plan on trying to get outside more seeing we have the  mobility  scooter now. so can get out on own some. as no longer  have home aid to take us out.

also getting more sorting and cleaning done. 


  • Does the heat if warmer days help support you?

no as we hate summer we not do good in hot weather. so for us summer hard on our body and affects out mood a lot too.  we enjoy fall and winter mostly.


  • Do you have any holidays planned?

not really we mostly just can not get out to things going on due to buses here only run from 7am to like 4pm. most things here for holidays  are at night. or on weekends and buses not run at all on weekends.

  • Any tips for making holidays run smoothly and without problems?

stay home and well just have fun foods and listen to music.

  • Are you a Star Wars fan?

no but we seen all the movies. we do like them some but would not say we fan of them.


4 replies
User Profile: Tinywhisper11
Tinywhisper11 May 4th, 2025

@stormieandpaws the heat can be a killer 🙁 make sure you stick up on icecream😋💖

1 reply
User Profile: MistyMagic
MistyMagic OP May 4th, 2025

@Tinywhisper11

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User Profile: MistyMagic
MistyMagic OP May 4th, 2025

@stormieandpaws thanks for joining in and sharing with us. The mobility scooter sounds a great asset. Let us know how you get on.

1 reply
User Profile: stormieandpaws
stormieandpaws May 5th, 2025

@MistyMagic

will do we might be getting home aid back too. but the Mobily  scooter will still be good too at leat in summer. so that still good

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User Profile: AffyAvo
AffyAvo May 3rd, 2025
  • What are your plans for May?

House projects, both wanted and unwanted. Hoping the unwanted one isn't going to be long and expensive.

  • Does the heat if warmer days help support you?

I don't do great with large swings or extreme temps. So far spring has been good. Hopefully no wildfire smoke issues this year!

  • Do you have any holidays planned?

Sorta, will firm up more details soon. Will get to spend some time by the ocean for sure, and maybe a 2nd trip  in the opposite direction for a relative's birthday.

  • Any tips for making holidays run smoothly and without problems?
    I try to keep a fairly flexible schedule so I can match the activity to how bad my symptoms are that day. I also purposely plan in some rest as well. I think it's easier to set back and watch some netflix in a hotel room when I have made it a part of a plan. It's easier to frame not as wasting time on vacation, but allowing myself to feel well enough to enjoy the things I want to do there.
  • Are you a Star Wars fan?
    I enjoyed the movies I have seen, but I think they are a little over-hyped.
3 replies
User Profile: Tinywhisper11
Tinywhisper11 May 4th, 2025

@AffyAvo a beach holiday sounds dreamy💖 your very lucky💖

User Profile: MistyMagic
MistyMagic OP May 4th, 2025

@AffyAvo thanks for joining us and sharing. Over hyped? 🤔🙃 

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The dances are good  lol

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1 reply
User Profile: AffyAvo
AffyAvo May 4th, 2025

@MistyMagic c3po-confused.gif

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User Profile: Tinywhisper11
Tinywhisper11 May 4th, 2025

@MistyMagic it would be cool to have a invisible force field helping us😁 I like baby yoda, he's soooo cute 💗 my Poland are to watch as many sunrises as I can, to do the third layer of the fairy garden I'm making😁 and to stay cool 😁 I have to water this huge brave to allow me to sit up so when it gets to hot, it's gets quite hard to cope

how are you misty??

2 replies
User Profile: MistyMagic
MistyMagic OP May 4th, 2025

@Tinywhisper11

Doing good thanks for asking. 

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1 reply
User Profile: Tinywhisper11
Tinywhisper11 May 5th, 2025

@MistyMagic 

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User Profile: MistyMagic
MistyMagic OP May 4th, 2025

Thanks for all your tips on make holidays and trips go smoothly. All are being collected and collated so please feel free to share more here.


2 replies
User Profile: AffyAvo
AffyAvo May 5th, 2025

@MistyMagic Had a mini getaway last month.

With a view like this resting in the hotel room between activities was alright. 

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1 reply
User Profile: MistyMagic
MistyMagic OP May 5th, 2025

@AffyAvo. That looks a lovely and peaceful break. I feel that sometimes a short break is better than a long one. What do you all think,?

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User Profile: LabeledBPD
LabeledBPD May 5th, 2025

@MistyMagic


hi. 

Glad it’s May a month you enjoy.

the warm weather definitely helps as I can only conclude that my eldest wants to be out and about. Hates his chair and bed. Interpreted from experience your next question asks,

have had many holidays in the last 3 months. On every occasion being out and about in a new situation was not met with such screams that are impossible to determine the cause.

nice weather enables more opportunities than cold weather to find someone to do. A consequence is a happier child.

we’ve had many holidays already, say 3 in a couple months. It’s expensive but I’ve time booked off from work unlike previous holidays so, many more holidays seems a realistic future.