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ScrabbleBrain profile picture
Things you wish weren't said or assumed about your health conditions (seen or invisible)
by ScrabbleBrain
Last post
August 30th
...See more Inspired by @Jesusredeemedme2425 because she always makes varied and interesting topic discussions :) 1. For some of us, we can't just pop a painkiller and have the pain, symptoms or discomfort magically washed away, those don't work for me. That's why I personally choose natural remedies, like heat and rest and binaural beats. 2. Why don't you take my word for it, that I can't manage that action because it aggravates my body or mind and leaves me broken in pieces for a long time.. You make me do something and after that I can barely function, then your response... Oh sorry, I assumed you were exaggerating because you don't look sick to me.. 3. Oh just smile and carry on, there's nothing you can do about it, so might as well be happy.. Nope sometimes I want to wallow and be miserable that is all too much, accept my mood, yours can be whatever you want! 4. Why don't you join us? Because it's a long taxing journey or activity and I cannot manage it. I'm not being difficult or dramatic. I have to think carefully if there are places to sit and rest, how long it takes, will I be standing or walking for a long time, you may not have consider these things but I do! 5. Stop judging a book by it's cover Yes I may look younger, I may look healthy, I may walk un-aided, that still doesn't mean you get to judge or assume I am not struggling inside or desperately grabbing onto walls or trying to give myself the mental fortitude to take another step instead of collapsing or resting because this time I don't think I can make it home.. 6. Illnesses vary from one person to the next, yours could be textbook, mine are not. Just because something works for you, doesn't mean it will for me. Stop assuming you know my body, my health better than I do. You've read something? Good for you, I know what works and what doesn't! 7. When I say, I can't manage much. It's extremely taxing to go to more than one place/do more than one activity, let alone several.. Don't scoff and laugh, like I'm being a Princess. I physically cannot manage it, it's not an exaggeration. 8. Stop being lazy! This one makes me scream. Taking care of myself, limiting my movements, napping or getting a lot of rest, helps my body repair itself. I'm not doing nothing, I'm preventing a potential strain or injury that has become all too frequent for me.
MistyMagic profile picture
Don't Turn Your Back!
by MistyMagic
Last post
August 30th
...See more Don't Turn Your Back! It can be hard sometimes to know how to act, What to do, What to say, When we see someone in a wheelchair, On crutches, Or with other visible disabilities. I know I used to feel like that, Until I was actually in a wheelchair. I am the same person, But I get treated differently now. I still have the same smile, But others don't. We are people too!  Real people, With real feelings, With real emotions. We sometimes get stuck on ramps, or steps, or in the sand, Even in doorways! So don’t turn your back, Say hello,  Smile, Don’t turn away!
CaringBrit profile picture
2026 - Taglist Disability Support
by CaringBrit
Last post
March 30th
...See more This thread controls an auto-updating tag list. To see the current list, go to Disability Support [https://rarelycharlie.github.io/taglist?3ec913e645043cdcd31f94a3324ab37c]. To add yourself to this tag list, press the Post to Thread button above and write the exact words Please add me. To remove yourself from this tag list, press the Post to Thread button above and write the exact words, Please remove me. This Taglist will be used for the Daily Check-Ins could even be used for Events etc. What happens after you join the tag list? You will notice an icon for a little bell up in the right corner of your screen. there is a letter icon, then the bell, then a jar, and then the icon for your account. That bell will tell you about your notifications. When we tag you, it will show up as a number on the bell. Click on the bell and a drop-down menu will appear and it will show you the link to the post where we tagged you. Current taglist as at January 1st 2026 @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 amazingFlamingo2054 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @communicativePond1728 @CompassionateMoon4024 @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @Daydreammemories @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enigmaticOcean8813 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @greekcatperson @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @JustLikeMellie @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @nessdamess @NevaehRose @norasnook @NotKhan2 @Ofenkartoffel @OneErased @PerfectHarmony10 @philosophicalAcai7803 @PhilosophicalWillow1426 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @Reachforthestars00 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @reservedOwl6476 @RiggsMortis @Rose1324 @sabeyesofblue3535 @Seachele @SereneEnergy9119 @SmolBurrahobbit12 @Smolperidotsbreakdown  @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @WishUponAStar968 @wonderfulRainbow817 @xandia @xxParkerxx @Zed786 Updated by MistyMagic
neatPear9815 profile picture
Fear of others
by neatPear9815
Last post
July 25th
...See more I truly wish for a way to know, that every person who I fear has no power to hurt me no matter how powerful they are. I truly wish that those who could hurt me forgive, let go and choose love so they need not bring bad energy on themselves and heal.
Arkansasgurl profile picture
Epilepsy Support
by Arkansasgurl
Last post
March 9th
...See more I'm looking for a listener with some knowledge of epilepsy. I'm really struggling with my diagnosis and restrictions. Thank you.
AffyAvo profile picture
What makes a disability worse?
by AffyAvo
Last post
December 12th, 2025
...See more An injury alongside it. PSA - winter footwear isn't just about warmth. Don't let being in a rush make you forgo some things that make things a bit safer. Going a short distance between 2 places with icy sidewalks? Paying for the transport is likely worth it. Get the walking exercise in on a day when a slip is less likely.  Feel free to join in on my broken wrist pity party 🦴
pinkKite8784 profile picture
How do i cope with anxiety?
by pinkKite8784
Last post
November 4th, 2025
...See more Lately ive been struggling with anxiety,like i'm scared that it will never get better and i'll be sick forever. I'm scared that i will never find an answer to whats causing my illness. I'm scared that people will judge me or think that i'm weak or they may not even believe me when i tell them i'm sick. I want to tell my teachers about my health condition but it's difficult for me to be honest about a difficult topic like chronic illness...but on the other hand, i don't want to suffer in silence.  How do you cope with anxiety? And how do i stop wanting to control everything, especially my future? 
brightAcres9027 profile picture
How to appreciate the miracle of my life
by brightAcres9027
Last post
August 15th, 2025
...See more I was in a terrible car accident 23 years ago. They said I'd be dead within 3 days. They said I'd be a vegetable if I came out if my coma. They said I'd never walk again, but after the years I did start walking again, although minutes and with pain. So now here I am, this living miracle. Nothing in modern science says I should be alive. But I don't want to be. I feel so useless. I had brain trauma, so it's hard for me to pick up around the house because up and down makes me dizzy and nauseous. My mobility is limited because if I'm on my feet too much I won't be able to walk at all for a couple of days. And I have lymphedema and lipedema, so my legs get super swollen if they're not elevated all the time. But I just feel so lazy. I feel like I should do more, but that I don't because I'm lazy. I feel worthless. I try to trust God has a plan for my life, but it's so hard to keep going sometimes. And then I feel bad for being ungrateful that God saved me.
Butterfly198440 profile picture
Any have
by Butterfly198440
Last post
January 31st, 2025
...See more Any else have any thse four things Schizoaffective Disorder (mania), Dysgraphia, Compound Adhd, High Fuctioning Autism.  I have may symptoms and struggle daily.  Anyone going through anyone of these with any of these challenges.
Disneywoman profile picture
Everyone is loosing spoons with Elderly Blind friend.
by Disneywoman
Last post
December 11th, 2024
...See more Hi everyone.  I come with a problem.    I have an elderly blind friend  whom is getting on basically everyone's nerves really. Mine, Mom's, and her Developmental Disabled Son as well.     May of 2023 I started to help her get to the hair salon in my town the first time on the bus and until March of this year  Dad would drive  her and me, to the hair place and I would put her back on the bus by herself to her apartment.   But March of this year- now  Mom has to come and help her with everything (getting her down the hill and across the street to the bus stop) and Mom sometimes has to do stuff like pour water for my friend or sort through her  wallet cards for particular reasons.     Also this friend wants to write a will so her son doesn't have the same headache she had when her husband (the son's father) died last year and didn't leave a will.   But according to my Dad they can't just "get an example form off the internet" but  she's not able to pyschially write anything anymore (beside blindness her hand gets shaky.)  Her son, now has to do all the cooking for the 2 of them because she's that blind now.  He's getting really annoyed about it.  Some other friends get annoyed about having to "help" her as well.  
Astraeuss profile picture
Someone to talk to (maybe a listener?
by Astraeuss
Last post
October 30th, 2024
...See more (Sorry if this comes across snippy this is my third time writing this to site keeps re setting) im 16 and have been dealing with likely POTS and EDS. I say likely because it’s impossible to get a proper diagnose when my parents refuse to take any of my doctors referrals or recommendations. Although I’m pretty sure my doctors diagnosed me with some sort of postural blood pressure thing and  hypermoblity but I digress. Things have gotten so hard. The pain keeps getting worse my hr keeps getting bigger and I’m able to walk and do less and less just making the pain worse. I struggle in school and my grades have dropped. I can’t get through a day. A 504 was meant to be sent in but it’s been 3 months and I don’t even know what’s on it. My dad has told me a few things but won’t show me. One thing being he took off putting my feet up because he “didn’t want me to cause issues for my teachers and be a problem”. So I don’t even know if it will help me at this point. I do have an amazing group of people surrounding me outside of parental figures but on one hand I don’t want to burden my friends more then I already do, and on the other just what someone to relate to. I’m worried about my future about jobs and aspirations. And I guess I just want someone who gets it I suppose.  Thanks for reading my rant if you’ve gotten this far it means the world 💜
shoutingintoether profile picture
sometimes i really really hate being disabled
by shoutingintoether
Last post
October 9th, 2024
...See more ventpost who else up late at night grieving - between being physically disabled & emotionally abused - their whole ass childhood/teenhood and also present and future, and thinking about what life could have been if only your teacher hadn't abused you to the point of needing a wheelchair and your parents hadn't been so awful but even if those two stayed abusive in this other world you would've actually been able to sneak out the window n shit and you would've been a real punk at an earlier age and you would've been cool and even more importantly you would've been physically able to process your rage instead of it just stewing pathetically inside you for years and years as you dissociate and feel less like a person and less actually grateful to be alive every day that passes
WellsFiction profile picture
IBS-M
by WellsFiction
Last post
July 22nd, 2024
...See more I was recently diagnosed with IBS-M. If anyone here has ever dealt with IBS or knows anything about it please leave a comment below. 
wowtdm profile picture
How do I deal with being disabled
by wowtdm
Last post
June 5th, 2024
...See more I am finally getting to the point where I might be able to get my disability check after waiting 8 months. After I heard the most I will make is $600 a month how is this going to afford rent or bills. I feel like I am being forced into poverty with little amount of money to support me or my family. My main point is how do I cope with this eventually I'll end up without a home or a car I've contacted all the support groups in my area and no one was going to offer me more money per month there is a housing option but it takes years to get into and they are located around bad neighborhoods. This is just very frustrating to have to deal with and I just needed to vent on this issue hopefully I can figure something out soon
DrumDude profile picture
The Opioid Pain Refugee Crisis
by DrumDude
Last post
March 24th, 2024
...See more Many of us with disabilities suffer from chronic pain conditions which are corrosive, debilitating and incredibly challenging on a day-to-day basis. There is a national narrative in America that there is an "opioid crisis". But opiate analgesic medications are first-line treatments for pain resulting from cancer, HIV, as well as other diseases, and of course chronic pain. This article provides a clear and direct explanation, as well as a starting point for understanding the effects this narrative has had on patients who rely on these medications, particularly the 2016 CDC Guideline for Prescribing Opioids for Chronic Pain [https://www.cdc.gov/mmwr/volumes/65/rr/rr6501e1.htm]. 

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more active in the Disability Community? Join us as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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