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ScrabbleBrain profile picture
Things you wish weren't said or assumed about your health conditions (seen or invisible)
by ScrabbleBrain
Last post
August 30th
...See more Inspired by @Jesusredeemedme2425 because she always makes varied and interesting topic discussions :) 1. For some of us, we can't just pop a painkiller and have the pain, symptoms or discomfort magically washed away, those don't work for me. That's why I personally choose natural remedies, like heat and rest and binaural beats. 2. Why don't you take my word for it, that I can't manage that action because it aggravates my body or mind and leaves me broken in pieces for a long time.. You make me do something and after that I can barely function, then your response... Oh sorry, I assumed you were exaggerating because you don't look sick to me.. 3. Oh just smile and carry on, there's nothing you can do about it, so might as well be happy.. Nope sometimes I want to wallow and be miserable that is all too much, accept my mood, yours can be whatever you want! 4. Why don't you join us? Because it's a long taxing journey or activity and I cannot manage it. I'm not being difficult or dramatic. I have to think carefully if there are places to sit and rest, how long it takes, will I be standing or walking for a long time, you may not have consider these things but I do! 5. Stop judging a book by it's cover Yes I may look younger, I may look healthy, I may walk un-aided, that still doesn't mean you get to judge or assume I am not struggling inside or desperately grabbing onto walls or trying to give myself the mental fortitude to take another step instead of collapsing or resting because this time I don't think I can make it home.. 6. Illnesses vary from one person to the next, yours could be textbook, mine are not. Just because something works for you, doesn't mean it will for me. Stop assuming you know my body, my health better than I do. You've read something? Good for you, I know what works and what doesn't! 7. When I say, I can't manage much. It's extremely taxing to go to more than one place/do more than one activity, let alone several.. Don't scoff and laugh, like I'm being a Princess. I physically cannot manage it, it's not an exaggeration. 8. Stop being lazy! This one makes me scream. Taking care of myself, limiting my movements, napping or getting a lot of rest, helps my body repair itself. I'm not doing nothing, I'm preventing a potential strain or injury that has become all too frequent for me.
MistyMagic profile picture
Don't Turn Your Back!
by MistyMagic
Last post
August 30th
...See more Don't Turn Your Back! It can be hard sometimes to know how to act, What to do, What to say, When we see someone in a wheelchair, On crutches, Or with other visible disabilities. I know I used to feel like that, Until I was actually in a wheelchair. I am the same person, But I get treated differently now. I still have the same smile, But others don't. We are people too!  Real people, With real feelings, With real emotions. We sometimes get stuck on ramps, or steps, or in the sand, Even in doorways! So don’t turn your back, Say hello,  Smile, Don’t turn away!
CaringBrit profile picture
2026 - Taglist Disability Support
by CaringBrit
Last post
March 30th
...See more This thread controls an auto-updating tag list. To see the current list, go to Disability Support [https://rarelycharlie.github.io/taglist?3ec913e645043cdcd31f94a3324ab37c]. To add yourself to this tag list, press the Post to Thread button above and write the exact words Please add me. To remove yourself from this tag list, press the Post to Thread button above and write the exact words, Please remove me. This Taglist will be used for the Daily Check-Ins could even be used for Events etc. What happens after you join the tag list? You will notice an icon for a little bell up in the right corner of your screen. there is a letter icon, then the bell, then a jar, and then the icon for your account. That bell will tell you about your notifications. When we tag you, it will show up as a number on the bell. Click on the bell and a drop-down menu will appear and it will show you the link to the post where we tagged you. Current taglist as at January 1st 2026 @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 amazingFlamingo2054 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @cal1860 @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @communicativePond1728 @CompassionateMoon4024 @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @Daydreammemories @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enigmaticOcean8813 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @greekcatperson @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @JustLikeMellie @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @nessdamess @NevaehRose @norasnook @NotKhan2 @Ofenkartoffel @OneErased @PerfectHarmony10 @philosophicalAcai7803 @PhilosophicalWillow1426 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @Reachforthestars00 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @reservedOwl6476 @RiggsMortis @Rose1324 @sabeyesofblue3535 @Seachele @SereneEnergy9119 @SmolBurrahobbit12 @Smolperidotsbreakdown  @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @WishUponAStar968 @wonderfulRainbow817 @xandia @xxParkerxx @Zed786 Updated by MistyMagic
VaehStanifer profile picture
Chronic pain
by VaehStanifer
Last post
March 2nd
...See more Does anyone Have any recommendations or remedies that help with mainly back pain. I have severe scoliosis that causes so much pain and a condition that makes all pain much worse than it should be. I’d really appreciate it if anybody could help
DogLady93 profile picture
CRPS/RSD
by DogLady93
Last post
February 3rd
...See more I'm just looking to see if anyone else on here has CRPS/RSD and would be interested in talking. I have it in my left leg and would love to get a mini support group together.
 profile picture
Endometriosis suspected disease
by
Last post
June 25th, 2025
...See more I'm suspected to have endometriosis. I'm on medical birth control. Which I have been on for about almost a year now. And next month, I finally have an appointment with my potential surgeon. I have been living in chronic pain for years, when it comes to my period. Since the start of puberty, at the age of 10. But, the last 2-3 years, they have just been unbearable. To the point where I collapse to the ground, and can not move. To the point, where I look three to four months pregnant, because of how bloated I am. That I dry heave almost every morning. And can spend my mornings, before work, throwing up 5 times, in concessions. I can barely eat, and I wake up in some nights, screaming in pain. Barely anything relives the pain. Can I'm no longer on pain meds. The meds I'm supposed to be on, our 100$ per bottle. Something I just cannot afford. I have two worries about this upcoming surgery. 1. That maybe it's not endometriosis or, that I end of getting misdiagnosed. Which seems to be quite common for those who do have it. 2. That I will never get any sort of quality of life back. This has ruined everything. My dating life, my independence. My happiness. I am dependent on my father. And I honestly just want to just die already. My father would have retired by now, if it weren't for me. I have no ideal what I am supposed to do. I am so tried of living in chronic pain. I'm only 22, and feel like my life is over. I want out of this. But I have barely any support at all.
blueHickory43 profile picture
PCOS
by blueHickory43
Last post
June 24th, 2025
...See more I have pcos and one of my ovaries has a cyst that became huge. Anyone else been through this? I'm scared...
NurturingA profile picture
Fibromyalgia & Severe Pain
by NurturingA
Last post
April 24th, 2025
...See more Hi Everyone. We all have our struggles, our trails and tribulations to go through, in order to appreciate and gain the lesson needed to help others as a living testament. I am very young, 34, and had a walker for a out 6 years. The first couple of years, I couldn't walk at all, couldn't urinate, couldn't do much and as tine went on, I was able to walk with a walker that have a seat. My body will tense up severely, especially when upset or in cold weather and even though I'm walking much better now, I still have those moments so have to be careful. I pushed myself to be better, after hearing I won't be able to walk again. It is possible to get better, but only with the right mindset and positive people around and I want to be that light and encouragement for others with disabilities of any form. We got this!! ❤🙏🏾
MistyMagic profile picture
🍪🍪🍪Pain Café Information🍪🍪🍪
by MistyMagic
Last post
April 14th, 2025
...See more Do you remember that here at the Disability Support Community we started looking at pain and chronic pain in more depth?  Pain? P A I N? PAIN!PAIN!PAIN!PAIN? [https://pain?%20P%20A%20I%20N?%20PAIN!PAIN!PAIN!PAIN?] Well I am pleased to announce that our Pain Café sessions have started and are well on the way now! So what is a Pain Café? - A warm and friendly, informal session led by a host who will share prompts to lead the conversation on different aspects of fatigue and pain, chronic pain, how it affects us, how we are feeling and of course what we each feel helps us whether it is meditation, medication*, or mindfulness! These will take place in the adult Disability Support room. So please do drop in and say hello and join the session where we share our feelings and thoughts over a cup of tea, coffee or hot chocolate complete with cookies and cakes. At the moment this is only taking place in the adult Disability Support room but if there is enough interest then I hope to roll this out to the teen room too! So please do let me know if you are interested in this or other topics. You can also fill in the Feedback & Ideas form https://forms.gle/TL5ACezAur1rD7kM8 We are looking for more people, members and listeners to join our team so that we can host more Pain Cafe sessions. Let us know if you would like more information. Join the Team! WE want YOU! to join our Team Learn more here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] or message me https://www.7cups.com/@MistyMagic [https://www.7cups.com/@MistyMagic]  or https://www.7cups.com/@AffyAvo [https://www.7cups.com/@AffyAvo]  If you would like to be kept up to date with this and be tagged in future posts then please let us know by pm or in a reply here!  @olivePineapple3146 @Tinywhisper11 @SmollPeridotsBreakdown @Theboymoana @YourCaringConfidant @Slowdecline48 @ResilientRipples @adventurousBranch3786  @AffyAvo @compassionateMoon4024 @LittleShip7721 Other posts about Pain! Boom or Bust - Pain and Pacing! [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] What Is Chronic Pain [https://www.7cups.com/forum/disabilities/PainSupport_1057/WhyDoWeGetChronicPain_347942/] Pain PAIN P A I N [https://www.7cups.com/forum/disabilities/PainSupport_1057/PainPAINPAINPAINPAINPAIN_345746/] *As per 7 Cups guidelines no dosages or brands may be shared. https://www.7cups.com/community-guidelines/ [https://www.7cups.com/community-guidelines/] T [https://www.7cups.com/community-guidelines/]his thread will be updated to show current Pain Café dates and times so please reply to the thread and then you will get a notification of when a new date is added. Info updated by Misty 25 March 2025
MistyMagic profile picture
Why Do We Get Chronic Pain?
by MistyMagic
Last post
March 21st, 2025
...See more Chronic pain is such a tricky thing, right? It’s not just about a past injury or a condition—it’s like your nervous system gets stuck in a loop, constantly sending pain signals even when there’s no real threat. So why does this happen? And more importantly, what can we do about it? Why Do We Get Chronic Pain? * Old Injuries That Don’t Let Go – Sometimes, an injury heals, but the nerves keep misfiring. It's like an alarm that won’t turn off. * Nervous System Sensitization – Your brain and spinal cord can actually get better at feeling pain, which is the worst kind of skill to develop. * Inflammation & Autoimmune Issues – Conditions like arthritis or fibromyalgia keep your body in a state of distress. * Emotional & Mental Factors – Stress, trauma, and anxiety can amplify pain, turning it up like a volume knob. * Lifestyle Issues – Poor posture, lack of movement, or even diet can contribute. What Can We Do About It? ✔️ Move, But Smartly – Gentle exercises like swimming, yoga, or even just walking can break the pain cycle. ✔️ Calm the Nervous System – Meditation, deep breathing, and mindfulness can help dial down the overactive pain response. ✔️ Nutrition Matters – Anti-inflammatory foods (think turmeric, omega-3s, leafy greens) can help keep pain in check. ✔️ Physical Therapy & Alternative Treatments – Acupuncture, massage, and even nerve stimulation can make a huge difference. ✔️ Medication & Medical Help – Sometimes, meds (from painkillers to antidepressants) or treatments like nerve blocks are needed. ✔️ Address the Emotional Side – Therapy, journaling, or even just venting to a friend can help reduce stress-induced pain. Long Term:Is chronic pain always chronic pain? A wierd question right? But . . what if the pain is not chronic but continuous instead. What if there is a cause that keeps happening that could be stopped or fixed? Maybe it is a re-injury, or a new injury? Maybe it is something that needs addressing, those are always things that run through our minds and that often get overlooked or ignored and put under the umbrella term of 'chronic pain'. So take time to examine your own pain. Keep a 'Pain Diary'. Jot down how you are feeling, what your pain score is, what you have done, did something cause you more pain, or less? Now over to you! * When does your pain feel worse? After certain activities? Certain emotions? * Have you noticed any foods that make it better or worse? * What’s one small change you could try today to see if it helps? Pain is complex, but understanding it is the first step to managing it. What’s been your experience with chronic pain? Have you found anything that helps? Written as part of the Disability Support Community Articles. More can be found here  [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/ArticlesResourcesAlphabeticList_233701/] If you have a condition or 'Awareness Campaign' that you feel we should recognise please message either myself @MistyMagic [https://www.7cups.com/@MistyMagic] (teens and adults) or @AffyAvo  [https://www.7cups.com/@AffyAvo](adults)
ResilientRipples profile picture
Chronic Pain and Being Misunderstood
by ResilientRipples
Last post
February 17th, 2025
...See more Chronic pain isn’t just about hurting—it’s about being misunderstood. It’s the frustration of people thinking you’re fine just because you look okay. It’s the exhaustion of having to explain yourself over and over, only to be met with doubt, pity, or unrealistic advice. It’s the loneliness of feeling like no one truly gets what it’s like to live in a body that doesn’t cooperate. People assume pain has a clear cause and a simple fix. Rest, exercise, medication. Surely, one of those should work, right? And if it doesn’t, then you must be doing something wrong. Maybe you’re not trying hard enough. Maybe it’s “all in your head.” Maybe you just need to be more positive. But they don’t see the full picture. They don’t see the nights spent awake, shifting positions, searching for relief that never comes. They don’t see the way pain drains your energy, steals your focus, makes even basic tasks feel impossible. They don’t understand that you have tried everything, and if there was an easy fix, you would’ve found it by now. It’s painful when people don’t believe you. When they minimise what you’re going through. When they make offhand comments like, “You’re too young for this,” or “But you were fine yesterday.” As if pain follows a schedule. As if it’s something you can control. The truth is, chronic pain is unpredictable. It changes day by day, sometimes hour by hour. Some days you can push through; other days, even sitting still hurts. You shouldn’t have to prove your pain just to be taken seriously. You shouldn’t have to explain why you need accommodations, why you cancel plans, or why you’re exhausted from doing “nothing.” If you relate to this, just know that you’re not alone. There are people out there who do understand, who do believe you, and who won’t judge you for what you’re going through. It’s okay to set boundaries with those who don’t get it. It’s okay to prioritise your own well-being over other people’s opinions. Your pain is real. Your experience is valid. And you deserve support, no matter how many people fail to see what you’re carrying. How do you handle being misunderstood?  What support do you wish others would give you? How are you today?
MistyMagic profile picture
Pain? P A I N? PAIN!PAIN!PAIN!PAIN?
by MistyMagic
Last post
February 15th, 2025
...See more February brings the start of the Disability Support Community focus on Pain! We all get pain. Some of us get pain sometimes. Some of us get pain most of the time. Some of us get pain all of the time! So whatever your thoughts on pain, or level of daily pain, or threshold of pain (and we will talk more about that later on) read on and let's find out more about pain together! This will be part of the 'Pain Cafe' series that will include open chats in the 'Disability Support' [https://www.7cups.com/chat/?c=2_b0dd39dc0ad3f07akKj6u2oym2BA4i8pC6eGFA] room, as well as hosted discussions (hosts wanted! message me!) [https://www.7cups.com/@MistyMagic] that will be advertised in this thread so please reply if you want to be tagged about future posts, and discussions in this series. The 'Pain Cafe’ is somewhere informal that is a safe space for us to learn and share together. We can come together and have a coffee, tea, or juice, and choose our favourite cake or cookie too! With the bonus of no calories or crumbs! First let's spend a little time discussing “What Is Pain?” Pain is weird, right? It’s both a physical and emotional experience, sometimes sharp and immediate, other times dull and lingering. It’s your body’s way of saying, “Hey, something’s not right,” whether that’s a stubbed toe, a heartbreak, or even stress manifesting as a headache. But pain isn’t just about suffering—it’s also a teacher. It tells you where your limits are, forces you to pay attention, and even helps you grow. Ever notice how people who’ve been through tough times often have a deeper sense of empathy? Pain shapes you, for better or worse. And then there’s the strange part—how pain can sometimes be subjective. Two people can experience the same injury but react completely differently. Some folks push through insane amounts of pain (think athletes or soldiers), while others feel every tiny discomfort intensely. It’s all about perception, past experiences, and even brain chemistry. Oh, and let’s not forget the bizarre cases where pain doesn’t work the way it’s “supposed to.” Like phantom limb pain - when someone loses a limb but still feels sensations where it used to be. Or chronic pain, which can be where your body keeps sounding the alarm even when there’s no real injury. Or chronic pain, long-term pain from constant re-injury or inflammation. At the end of the day, pain is just part of being human. It sucks, sure, but it also reminds us we’re alive. If pain is a warning signal, listen to it and allow healing. If pain is chronic or misleading, it can be important to retrain the brain and nervous system to stop overreacting. Learning to recognize the difference allows for better pain management and quality of life. Pain is a complex sensory and emotional experience that signals potential or actual harm to the body. It’s essentially the body's warning system, alerting you to injury, illness, or danger. Pain can be categorized in different ways, such as: * Acute pain – Short-term, typically caused by injury or illness (e.g., a cut, burn, or broken bone). * Chronic pain – Long-lasting pain (lasting more than three months) that can sometimes persist even after the initial injury has healed (e.g., arthritis, nerve damage). * Neuropathic pain – Pain caused by nerve damage or dysfunction rather than an obvious physical injury (e.g., sciatica, phantom limb pain). How Does the Brain Perceive Pain? The perception of pain involves a complex process that includes sensory input, nerve signaling, and brain interpretation. Here’s how it works: * Detection (Nociception): Specialized nerve endings called nociceptors detect harmful stimuli (heat, pressure, chemicals, or injury). These receptors are located in the skin, muscles, joints, and organs. * Transmission: The nociceptors send electrical signals through sensory neurons to the spinal cord. From there, the signals travel up to the brainstem and thalamus, which act as relay centres. * Processing in the Brain: The thalamus sends the pain signals to different brain regions: * Somatosensory Cortex: Determines the location and intensity of pain. * Limbic System: Processes the emotional aspects of pain. * Prefrontal Cortex: Helps with decision-making and how to react to the pain. Pain Perception: Your brain interprets the signals as pain and decides how to respond—whether to move away, seek help, or endure it (we all know that feeling don't we?) Modulation: The brain can amplify or suppress pain using neurotransmitters like endorphins (natural painkillers) and serotonin. This explains why adrenaline can make you temporarily "ignore" pain in emergencies. Why Does Pain Feel Different for Everyone? Pain perception varies based on: * Genetics & Biology (Some people have a higher pain threshold). * Psychological State (Stress and anxiety can heighten pain). * Past Experiences (Chronic pain sufferers often have altered nerve responses). Pain isn’t just a physical sensation—it’s also influenced by mood, expectations, and memory. This is why two people can have the same injury but experience pain differently. Over to you! Q. What do you think— is pain a necessary evil, a friend, or just a glitch in evolution? Q. Do you have pain? How would you describe it? Sharp, Hot? Stabbing? Dull? Share with us. Q. Tag someone that you think might be interested in joining in with our 'Pain Cafe' and the series of forum posts here too!
MistyMagic profile picture
Boom! or Bust! All about pacing . . .
by MistyMagic
Last post
February 5th, 2025
...See more This post is part of our new series on  ⚡P A I N !💥 All About. . . Boom!⬆️ Bust 🔽 and Pacing 🟰 The concept of "boom-bust" and “pacing” particularly in the context of disabilities, refers to a pattern of energy expenditure characterized by alternating periods of high activity or productivity ("boom") and subsequent periods of low energy, exhaustion, or rest ("bust"). This approach is often employed by individuals with chronic illnesses, disabilities, or conditions that cause fluctuations in energy levels, such as chronic fatigue syndrome, fibromyalgia, or certain types of disabilities affecting energy levels. How often have you started out at the beginning of an activity or project full of energy (Boom) racing along only to begin feeling tired, but still you carry on because you don’t want to stop, or you just want to finish what you are doing, and then the next day you are so very tired and in pain or exhausted and cannot do anything (Busted) and the recovery takes a few days or even longer? Here's a breakdown of the “boom-bust” and “pacing” approach and its implications for individuals with disabilities: Understanding Energy Levels: Boom-bust pacing recognizes that individuals with disabilities often have limited energy reserves, which can fluctuate from day to day or even within the same day. It emphasizes the importance of being attuned to one's own energy levels and learning to manage them effectively. Managing Activities: Rather than trying to maintain a constant level of activity throughout the day, boom-bust pacing involves identifying periods of higher energy (boom) and using them for more demanding tasks or activities, while conserving energy during periods of lower energy (bust) through rest or less demanding activities. Prioritizing Tasks: Individuals practicing boom-bust pacing often prioritize tasks based on their energy levels. Important or demanding tasks are tackled during periods of higher energy, while less critical tasks may be deferred to periods of lower energy. Ask yourself these questions and think about your answers, then jot them down so that you have a list of your priorities, you can add them in your reply to this post. * What is important? - read all the points below before deciding! * What MUST I do? * What do I want to do? * What do others want me to do? * What am I expected to do? (may include deadlines) * What can I do? Avoiding Overexertion: By pacing activities and balancing periods of activity with rest, individuals can reduce the risk of overexertion, which can exacerbate symptoms or lead to "crashes" where energy levels plummet (bust), sometimes for an extended period as the recovery needed after a “boom” can be extensive and disproportionate to the gain. Examples:  You may want to finish weeding a flower border and do it all in one afternoon, the flower border looks great but you end up exhausted in bed for 3 days. If you had spread it over 2 afternoons then you would not end up exhausted. You have an important exam next week, so you stay up all night studying. The next day you cannot get out of bed because of the body aches and exhaustion. If you had split the studying into short periods then you would not have crashed so badly and could have revised for a few hours every day.  Remember to STOP BEFORE the pain is too bad or STOP BEFORE you feel exhausted, that way the rebound to recovery is faster, and smoother, and repeatable. Take a look at https://www.pomodorotechnique.com/ [https://www.pomodorotechnique.com/]  splitting studying or any task into shorter periods. The original technique has six steps: * Decide on the task to be done. * Set the Pomodoro timer (typically for 25 minutes). * Work on the task. * End work when the timer rings and take a short break (typically 5–10 minutes). * Go back to Step 2 and repeat until you complete four pomodoros. * After four pomodoros are done, take a long break (typically 20 to 30 minutes) instead of a short break. Once the long break is finished, return to step 2. ( a pomodoro is an interval of work time). Also the Spoon Theory [https://www.7cups.com/forum/DisabilitySupport_47/ArticlesResourcesConditionSpecificInformation_458/SpooniesandDropitlikeitsPOTSshirts_20186/] 🥄🥄🥄🥄🥄🥄 and Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/BoomorBustAllaboutpacing_327034/] Flexibility and Adaptability: Boom-bust pacing requires flexibility and adaptability, as energy levels can vary unpredictably. It's important for individuals to listen to their bodies, adjust their plans as needed, and never feel guilty for needing to rest or modify their activities. Communication and Advocacy: In work or social settings, it's essential for individuals practicing boom-bust pacing to communicate their needs effectively and advocate for accommodations or adjustments when necessary. This might involve explaining their pacing approach to employers, colleagues, or friends and asking for understanding and support. Self-Care and Wellness: Boom-bust pacing is ultimately about self-care and managing one's health effectively. It involves not only managing physical energy but also attending to emotional and mental well-being, recognizing the importance of rest, relaxation, and activities that bring satisfaction, happiness, and joy. Overall, boom-bust pacing can be a valuable strategy for anyone, but more so for individuals with disabilities to manage their energy levels and navigate daily life more effectively. By learning to listen to their bodies, prioritize tasks, balance activity with rest ie: pacing themselves, individuals can optimize their functioning and improve their quality of life despite the challenges posed by their disabilities. Chronic Pain Resources  Here Living with Chronic pain Here [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/] More on Pacing Here [https://www.cfsselfhelp.org/library/pacing-numbers-using-your-heart-rate-to-stay-inside-energy-envelope] Q [https://www.7cups.com/forum/disabilities/ArticlesResourcesConditionSpecificInformation_458/AFewTipsonHowToLearnToLiveWithPainbyDrCherylAMacDonald_23694/]uestions to ask yourself, please reply below! * Do you recognize yourself as a ‘boom-bust’ or ‘pacing’ individual? * Have you ever used this method? If you haven’t will you try it in the future? If not why not? If you do does it help? * Can you remember one time when you carried on when you should have stopped and rested? What happened? * Do you have tips to share with us, please do! Consider joining the Disability Community Support Team. More information Here [https://www.7cups.com/forum/disabilities/CommunitySpace_227/JoinTheDisabilitySupportCommunityTeam_325009/] Tag list @777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @AguaNector6700 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @AutiBoy @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @Bndonovan02 @bouncyBreeze44 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Chloe1644 @cinnamoncocoa @CocoaCassie @Colorfulcatsofhope @considerateBunny7436 @Countrygirl095 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticOwl866 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @IndigoWhisper @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @Kittibear @KuhnDisabled101 @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MartianGirl347 @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @PerfectHarmony10 @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @Plantsaremybestfriends @Poppia @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @RiggsMortis @sabeyesofblue3535 @Seachele @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @tearstruck @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @Walker7957 @WeedyGarden @wishfulWillow6962 @WishUponAStar968 @wonderfulRainbow817 @xandia @Xisle @Zed786 Add or Remove yourself in this thread HERE [https://www.7cups.com/forum/disabilities/WeeklyCheckin_1053/2024TaglistDisabilitySupport_202464/] See more on pain here Pain Cafe Serie [https://www.7cups.com/forum/disabilities/CommunitySpace_227/PainPAINPAINPAINPAINPAIN_345746/]s 
 profile picture
Pain
by
Last post
January 27th, 2025
...See more I been dealing ankl e problems like a sprain ankle. , three torn stuff in my foot and noe pain I had. From a operation I had a half a a year ago on ankle. Still in pain and not moble
Stitchlover17 profile picture
Pain
by Stitchlover17
Last post
November 19th, 2024
...See more Chronic pain and just pain in general 🙄🤷🏻‍♀️🤦🏻‍♀️😭

Welcome to the Disability Support Community!

This is an inclusive community where people can seek and provide support and post about topics related to learning disabilities, chronic pain, chronic illnesses and conditions, physical disabilities and developmental disabilities. You are welcome to join in even if you don't used disabled as a label for yourself.

There are a number of ways to get involved and be supported. We have a pop up teen chatroom and a 24/7 adult chatroom.

There are guides for Chronic Pain and T2 Diabetes
There are Q&A sections for Disabilities and Chronic Pain

Members may connect with a listener who has disabilities, chronic pain, cancer, diabetes, adhd or autism listed as a topic and there are listeners with disabilities supporting people with disabilities

We encourage people to post new threads and respond to others in the forums! Some good ways to get started are to introduce yourself and to join our tag list to be notified of weekly check ins and events. We also have an Interview Series: if you would be open to sharing more about yourself and want to be interviewed.

Looking to be even more active in the Disability Community? Join us as a leader!

*Note we are inclusive of all disabilities but ADHD and Autism each of their own communities which may be of interest to some of you.

Community Guidelines

🌟 Please be respectful of everybody's thoughts and opinions.

🌟 Don't think you are alone, so please share

🌟 Please be patient if you feel like your concern hasn't been addressed yet; we are working hard to add more leaders and supporters.

🌟 If you have any concerns, reach out to a leader or make a post.

🌟 For Listeners only - please remember that you are here to give support, if you are seeking support then please switch to your Member account.

🌟 Most of all - don't forget to be awesome! You are loved and accepted here, no matter what!

Guidelines For Using AI 


We all want the Disability Support Community to be a safe place where people are able to be their authentic selves and receive support. We understand that AI tools can be helpful in reducing barriers, allowing people to better express themselves, and allowing those with some disabilities to be able to read, write, and post, but excessive, or complete use of AI can feel robotic and reduce supportive person-to-person interactions. It can also lead to false impressions of the poster. We want to try and avoid this and help our Community to be as inclusive and as welcoming as possible to all users.


What is AI?

AI is short for ‘artificial intelligence’ which is software, a program or algorithm that works to sort, order, and combine data to give a response or answer to a question or input. Artificial intelligence is the ability of a computer, software, or computer-controlled robot to perform tasks that are commonly associated with the intellectual processes characteristic of humans, such as the ability to reason. As yet no AI’s match full human flexibility over wider domains or in tasks.

Some of the most common examples of AI in use today include: 

  • ChatGPT: Uses large language models (LLMs) to generate text in response to questions or comments posed to it. 

  • Google Translate: Uses deep learning algorithms to translate text from one language to another. 

  • Netflix: Uses machine learning algorithms to create personalized recommendation engines for users based on their previous viewing history. 

  • Tesla: Uses computer vision to power self-driving features on their cars.



If using AI tools please adhere to the following:


  • Include some of your own personal expression. This could come from a detailed, personal prompt to the AI tool or include some of your own words with a post.

  • Cite which AI tool(s) you used, which applies both to AI-generated and AI-edited text as well as images too. For instance, if you use Dragon to voice type then say so and if the text is AI-edited include that fact too.

  • Avoid posting misinformation. AI sometimes creates personalized anecdotes, facts, or references. If you are sharing an experience, don’t post an AI-fabricated one. If posting information check that it is correct and aligns with trustworthy sources.

  • Cite the source of your information. It can be important to know and understand the source of information posted, AI-generated content may draw information from their database so try and use factual sites that can be checked and that aren’t misleading.

  • Don’t make threads in excess. AI can make it fairly quick to create a lot of content. We want to give everyone’s posts a chance to be seen. Please don’t post a large amount of threads in a short period of time, this is called ‘flooding’ and can prevent other posts from being seen.

  • If you do feel like there’s a lot you want to state on one topic, consider making multiple posts within the same single thread. Or create your own ‘Disability Diary’ thread and post there, this will increase your visibility, and those who reply will be notified when you add another post.

  • Follow the guidelines. You are responsible for what is posted from your account, even if AI was used in the creation of the post, so please double-check what you write and post!


For more information please read this post by @Heather225 - 7 Cups Community Director.


Do’s ✅  and  ❌ Don’t List:


Do - Humanize your post with your own expression and words

Do - Cite the AI tool(s) you use

Do - Make ONE thread and post to it if there are several posts you want to make

Do- Read things over and ensure the guidelines are being followed

Don’t post something that is entirely AI-generated with little input from yourself

Don’t post misinformation

Don’t flood the forums with AI threads, or multiple threads


If in doubt please ask @MistyMagic  (Adults and Teens) or @AffyAvo (Adults) or consider joining the Disability Community Support Team. More information Here







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